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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Stelara diary

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Stelara diary
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#51
Mon-14-08-2017, 16:34 PM
I don't think that you are doing badly at all , nothing changed for me until after the second injection at 4 weeks and it was only then it started to work . I was very bad with the P and PsA though Stelara has never done much for the PsA .
All the best spotty .
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Spotless Offline Author
Member


Posts: 36
Threads: 2
Joined: Jul 2017
Gender: Female
Location: London
Treatment: Stelara
#52
Mon-14-08-2017, 17:03 PM
D Foster: How long have you been on Stelara and how are you treating your arthritis if the Stelara isn't doing much for you?
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#53
Mon-14-08-2017, 17:08 PM (This post was last modified: Mon-14-08-2017, 17:08 PM by D Foster. Edited 1 time in total.)
(Mon-14-08-2017, 17:03 PM)Spotless Wrote: D Foster: How long have you been on Stelara and how are you treating your arthritis if the Stelara isn't doing much for you?

I have been on Stelara about 5 years now but my PsA I am controlling the pain with Tramadol , the Stelara does improve it very slightly . I was looking at going on to the same as Fred but my derm wants to keep me on Stelara for the time being.

Dave
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Spotless Offline Author
Member


Posts: 36
Threads: 2
Joined: Jul 2017
Gender: Female
Location: London
Treatment: Stelara
#54
Mon-14-08-2017, 17:18 PM
(Mon-14-08-2017, 17:08 PM)D Foster Wrote:
(Mon-14-08-2017, 17:03 PM)Spotless Wrote: D Foster: How long have you been on Stelara and how are you treating your arthritis if the Stelara isn't doing much for you?

I have been on Stelara about 5 years now but my PsA I am controlling the pain with Tramadol , the Stelara does improve it very slightly . I was looking at going on to the same as Fred but my derm wants to keep me on Stelara for the time being.

Dave

Wow 5 years on stelara and being effective on p sounds like a blessing. 
Dr prescribed me Celecoxib So will give that a go for the arthritis.
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#55
Mon-14-08-2017, 18:12 PM
(Mon-14-08-2017, 17:18 PM)Spotless Wrote:
(Mon-14-08-2017, 17:08 PM)D Foster Wrote:
(Mon-14-08-2017, 17:03 PM)Spotless Wrote: D Foster: How long have you been on Stelara and how are you treating your arthritis if the Stelara isn't doing much for you?

I have been on Stelara about 5 years now but my PsA I am controlling the pain with Tramadol , the Stelara does improve it very slightly . I was looking at going on to the same as Fred but my derm wants to keep me on Stelara for the time being.

Dave

Wow 5 years on stelara and being effective on p sounds like a blessing. 
Dr prescribed me Celecoxib So will give that a go for the arthritis.

A lot of people knock MTX but it worked on the P up to 80% but was really good for the PsA for 9 years . Stelara has been a fantastic and has given me my life back because in the 12-14 weeks after I stopped the MTX I was covered virtually head to toe in P of all types of P.
I have been so bad in the past that I have been in hospital three times with the dam thing , the last time I was in for 8 weeks which was about 18 years ago now. Cyclosporine was one that I had and I thought I was dying on that the side effects were horrendous , Aceterin was another that was not good with ingrowing nails which I had to have removed in fact MTX was a life saver at the time.
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#56
Mon-14-08-2017, 20:47 PM
(Mon-14-08-2017, 16:06 PM)Spotless Wrote: They still want to see whether the Stelara will help with the arthritis and was told it can take up to 4-6months to see whether it's effective or not.

I can see their point. Stelara isn't great for psoriatic arthritis, but it helped me for just over 6 years before giving up. It's not a patch on cosentyx and there were moments I needed some pain killers especially when it was damp, but it did help. It depends how bad the psoriatic arthritis is, but I found getting rid of the psoriasis with Stelara helped me get more positive over the psoriatic arthritis.

My advise would be stick with it and review like they say after 6 months, if it's not helping enough with the psoriatic arthritis but clearing the psoriasis then you can decide the next step.
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Spotless Offline Author
Member


Posts: 36
Threads: 2
Joined: Jul 2017
Gender: Female
Location: London
Treatment: Stelara
#57
Fri-18-08-2017, 16:59 PM
4th week booster injection done, no side effects to report.
Improving more and more but still new spots come and go but not as serve and aggressive. Looking so much better than 4 weeks ago... I guess Stelara is doing its job slowly.

Hoping there will be more improvements in the upcoming weeks.
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#58
Fri-18-08-2017, 17:12 PM
(Fri-18-08-2017, 16:59 PM)Spotless Wrote: 4th week booster injection done, no side effects to report.
Improving more and more but still new spots come and go but not as serve and aggressive. Looking so much better than 4 weeks ago... I guess Stelara is doing its job slowly.

Hoping there will be more improvements in the upcoming weeks.

That's great spottty I think that you are on the way to a clear skin and happy times. boing
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#59
Fri-18-08-2017, 18:35 PM
Great news spotty ......it's always good to hear when a treatment starts working .......pretty good for 4 weeks and heading in the right direction Thumb
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#60
Fri-18-08-2017, 19:39 PM
Yep I agree it's going very well.
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