Hi all

[KwakerAndy]

So hello to everyone in my boat. We all know the great fun we have with this horrible affliction so I'm here to share my experiences and treatments (and to learn anything new I can along the way)

I have had pretty much all available topical forms of creams and lotions, some success but not really any more than 2/10 - Moved on to light treatment twice, cleared me first time for around four months and second time for around six weeks. 

Acetretin, bloody awful to use for me, cracked lips and the feeling that the top couple of layers of skin was sliding across the others on my hands. 0/10 Hated it and didn't clear anything at all...

Next was Cyclosporin, this was a God send. Full clearance for just over two years when I started getting abnormal bloods (kidney) along with swollen gums, so I was taken off it. 10/10
Huge flare up 

Next on the list was Fumaderm. Had small improvement with this and the most mental hot flushes ever! Ladies, you have my sympathy. 3/10

Next was Methotrexate. Fairly good at keeping things under control but without actually clearing the red patches, and you can't drink!!!. Again, bad bloods (liver) had me off it within 14 months 6/10
Huge mega never been anywhere this bad flare up 

After almost 3 months without any treatment, I have just taken the first two injections on Consentyx last Friday. Fingers crossed this works as I'm running out of options... 

I will keep you up to date on how this goes, hope to see an improvement very soon (still in long sleeves and it's now June) 

[Fred]

Hello KwakerAndy   to Psoriasis Club.

And also welcome to the Bio's. You have tried the rest now it's time to try the best. (watch out here comes the DMF gang)  

Have a good look around and don't hesitate to start another thread in Prescribed Treatments For Psoriasis to monitor you progress.

I have found Cosentyx excellent for psoriatic arthritis, but not so good for psoriasis.

Good luck with it I hope it is finally the one you are looking for.

Regards.

Fred.

[jiml]

Hi there   to the club KwakerAndy I hope you will enjoy your membership, you have found a great place to record your journey and to compare notes with fellow sufferers  in a friendly safe environment, I see you have been through the list of treatments and failed on them .....there are still more should Cosentyx not suit you .
But most members on it have done well ....I haven't got to the biologicals yet I'm still on oral and for me Methotrexate was a nightmare, but Fumaderm has worked well for me for over 6 years ....I agree the flushes and cramps at the start were a bit of a nightmare
i look forward to reading more of your treatment, feel free to jump in on any of the other threads if you have an opinion or advice to offer
Hope to see you in off topic some time...I'm usually in the [Group Specific]

A great way to stay in touch is to subscribe to our free monthly newsletter, you can do that if you wish is to click Groups and then click on join group

Jim

[KwakerAndy]

Cheers guys nice to know there's other people who's been through the same thing over many years. Got to keep a positive outlook as I believe letting it get to you only makes it worse.

[Caroline]

Hi KwakerAndy,

Welcome to psoriasisclub.
No opportunity to say hello more extensively, but I’ll see you around.

Cheers,
Caroline

[jiml]

Cheers guys nice to know there's other people who's been through the same thing over many years. Got to keep a positive outlook as I believe letting it get to you only makes it worse.

Yes stay positive it’s not always easy, that’s why we come here, there’s always someone nearby who understands, who you can moan to if it gets you down ...
but staying positive does help I’m sure of that ... it’s a disease I think that is made worse with negative thoughts

[Fred]

Cheers guys nice to know there's other people who's been through the same thing over many years. Got to keep a positive outlook as I believe letting it get to you only makes it worse.

Yes stay positive it’s not always easy, that’s why we come here, there’s always someone nearby who understands,  who you can moan to if it gets you down ...
but staying positive does help I’m sure of that ... it’s a disease I think that is made worse with negative thoughts  

[Beverley]

Hello and welcome from me too. This place is a great place for support and not only for psoriasis related support. I find everyone really supportive when you need it without being in your face. As well as information over treatments and sharing experiences it’s a great place to come and have fun.
There are a few ‘nutters’ in here who are full of wit and humor. I’m the sensible one

[D Foster]

Welcome to the club KA , this is the place to find more information on P and PsA than any where else that I know. Your journey with P is very similar to mine though the cyclosporine nearly killed me I was on MTX for 9 years and now I am on Stelara which has been fantastic and for the last 5 years I have been 99% clear though it's not as good as some of the other bio's for the PsA . I had similar experiences on acetretin plus ingrowing nails , didn't have fumerdem as I don't think that it was used that far back.
This is a great place as all the inmates are friendly and helpful , no advertising and no cons trying to sell you magic cures.
Take care and have a look around and ask any questions which will be answered by people who have the same problems.

[JohnB]

Hi KA  and welcome to the Club 
Well it looks like you have run the gamut of lotions and potions. I'm into my secondish year of Acitretin. I held off orals as long as I could. For me it is Acitretin or nothing. Due to earlier medical issues my Dermy is very very reluctant to give me anything else. I know what you mean about the lips and the peeling, but as the clearance has been reasonable it's something I am prepared to put up with.
You will find us all very friendly and mostly house trained and for a little light releif dont forget the off topic section. Chances are there will be somebody propping up the bar.

JohnB