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Psoriasis Club › HealthHealth Boards › Introductions v
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Hi trying Acitretin for first time

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Hi trying Acitretin for first time
Meggy Offline
Novice


Posts: 5
Threads: 1
Joined: Jun 2018
Gender: Female
Location: Aberdeen, Scotland
Treatment: Starting Acitretin
#1
Fri-22-06-2018, 20:09 PM
Hi everyone,  I've had psoriatic arthritis for about 6 years - arthritis came with a vengeance about 4 years ago. Luckily after a pretty bad year the arthritis calmed down and I have had only light twinges since. Have also bronchiectasis so medication for this and psoriasis is a double whammy on the immune system. Should have started Acitretin in November last year but decided at the last moment not to as I was frightened of the side effects. Symptoms are much worse now and I have tried almost every cream known with no great success. Only thing which gave the most respite was when I was on a course of steroids for my lungs and that cleared it wonderfully. Only thing was that I nearly always had a bad flair up after. I've enjoyed reading through the posts, got some great info on Acitretin.  Second tablet tonight - fingers crossed side effects aren't too bad.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Fri-22-06-2018, 20:29 PM
Hi Meggy and  Welcome to the forum, it's good that you have been reading up on Acetretin here, we have several members doing very well on it and I'm sure you will get to meet some of them... if you have any questions just shout out and I'm sure someone will answer you. Is acetretin the first oral drug you have been offered or have you tried others ..

I hope to read more of how it works for you ....you can usually find me propping up the [bar] if you want a chat or a virtual drink
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#3
Fri-22-06-2018, 20:34 PM
Hello Meggy  Welcome to Psoriasis Club.

I'm pleased to hear you have read through some of our threads of our members and decided to join in. Don't hesitate to start another thread in Prescribed Treatments For Psoriasis if you wish, it's a good way of keeping track of your progress and your input could help others.

But for now I wish you good luck with Acitretin and don't hesitate to join our members in [Group Specific] I'm the sensible one if you do by the way. Wink

Regards.

Fred.
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#4
Sat-23-06-2018, 00:19 AM
Welcome Meggy Wave


I hope that you enjoy yourself on here lassie and ask any questions you may have lurking in your mind : Thumb

You said that your psoriasis is cleared because of the steroids you were given for your lungs, I’m sorry to say Meggy, the psoriasis will return I’m sorry to say but the Acitretin should help a little.

As for a moisturiser to help your skin, get yourself some raw virgin coconut oil and rub it gently in your skin, yes you may smell like a Bounty bar but it’s extremely good stuff Meggy, trust me, I’m a bear Whistle

Anyway Meggy, hope that you come back and tell us how you’re doing Bigarm

GB GB
Wooley Offline
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#5
Sat-23-06-2018, 11:39 AM
Wave Hi Meggy

Welcome to the club.....

I am on acitretin too, low dose though but it seems to be keeping everything at bay at the moment *touch wood*.
Enjoy having a look around, lots of good info on here along with lots of lovely people......  Smile

Wooleyb
Meggy Offline Author
Novice


Posts: 5
Threads: 1
Joined: Jun 2018
Gender: Female
Location: Aberdeen, Scotland
Treatment: Starting Acitretin
#6
Sat-23-06-2018, 11:53 AM
(Sat-23-06-2018, 11:39 AM)wooleyb Wrote: Wave Hi Meggy

Welcome to the club.....

I am on acitretin too, low dose though but it seems to be keeping everything at bay at the moment *touch wood*.
Enjoy having a look around, lots of good info on here along with lots of lovely people......  Smile

Wooleyb

Thank you for the welcome.  I've been started on the low dose too and was worried that it would not work.  Take hope from your message that it may. 
Meggy
Meggy Offline Author
Novice


Posts: 5
Threads: 1
Joined: Jun 2018
Gender: Female
Location: Aberdeen, Scotland
Treatment: Starting Acitretin
#7
Sat-23-06-2018, 11:54 AM
(Fri-22-06-2018, 20:29 PM)jiml Wrote: Hi Meggy and  Welcome to the forum, it's good that you have been reading up on Acetretin here, we have several members doing very well on it and I'm sure you will get to meet some of them... if you have any questions just shout out and I'm sure someone will answer you. Is acetretin the first oral drug you have been offered or have you tried others ..

I hope to read more of how it works for you ....you can usually find me propping up the [bar] if you want a chat or a virtual drink

Thank you everyone for the welcome.  I have tried a few other forums but this seems to be the best by far.  Meggy
Meggy Offline Author
Novice


Posts: 5
Threads: 1
Joined: Jun 2018
Gender: Female
Location: Aberdeen, Scotland
Treatment: Starting Acitretin
#8
Sat-23-06-2018, 12:01 PM
(Sat-23-06-2018, 00:19 AM)Grizzly Bear Wrote: Welcome Meggy  Wave


I hope that you enjoy yourself on here lassie and ask any questions you may have lurking in your mind  : Thumb

You said that your psoriasis is cleared because of the steroids you were given for your lungs, I’m sorry to say Meggy, the psoriasis will return I’m sorry to say but the Acitretin should help a little.

As for a moisturiser to help your skin, get yourself some raw virgin coconut oil and rub it gently in your skin, yes you may smell like a Bounty bar but it’s extremely good stuff Meggy, trust me, I’m a bear   Whistle

Anyway Meggy, hope that you come back and tell us how you’re doing  Bigarm

GB GB

Hi GB  Thanks for the tip about the coconut oil - not a bad thing to smell like a Bounty bar so will definitely try this.  I take chest infections almost continually in the winter so have many prescriptions of predisnolene so in the winter I have periods when skin is pretty good and then times when it is worse than normal because of the flairs -  but they say it is an ill wind that blows nobody any good and it is a pleasure to not have the niggling skin problems. 

Meggy
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#9
Sat-23-06-2018, 12:04 PM
(Sat-23-06-2018, 11:54 AM)Meggy Wrote: I have tried a few other forums but this seems to be the best by far.  Meggy

That's good to hear Meggy. I'm sure our members will be happy knowing their efforts are paying off.  Smile
Meggy Offline Author
Novice


Posts: 5
Threads: 1
Joined: Jun 2018
Gender: Female
Location: Aberdeen, Scotland
Treatment: Starting Acitretin
#10
Sat-23-06-2018, 12:06 PM
(Sat-23-06-2018, 11:53 AM)Meggy Wrote:
(Sat-23-06-2018, 11:39 AM)wooleyb Wrote: Wave Hi Meggy

Welcome to the club.....

I am on acitretin too, low dose though but it seems to be keeping everything at bay at the moment *touch wood*.
Enjoy having a look around, lots of good info on here along with lots of lovely people......  Smile

Wooleyb

Thank you for the welcome.  I've been started on the low dose too and was worried that it would not work.  Take hope from your message that it may. 
Meggy
Hi Wooleyb 

 I forgot to ask you if the side effects of acitretin stay the same or do they subside as time goes on.  All new to this but hopefully I will be able to answer questions instead of asking all the time.    Yep

Meggy
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