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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Tremfya for psoriatic arthritis Fred's journey

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Tremfya for psoriatic arthritis Fred's journey
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#11
Sun-01-03-2020, 11:49 AM
(Sat-29-02-2020, 23:44 PM)Raxyl Wrote: Good luck Fred, l hope it works well for you.

Thank you Craig Thumb

(Sun-01-03-2020, 08:37 AM)Caroline Wrote: The fact that it is not approved, will not say that it wouldn’t work, luckily.
It only proves that paper and people around the paper are slow.
I did hear in the gossip trajectories, that the European rules on registration of new medicine by the way are being revised and will be speeded up.

No I know it doesn't mean it won't work, I was just saying that it is not prescribed for psoriatic arthritis at the moment: Tremfya going after psoriatic arthritis

As for speeding things up in Europe, that won't make the French go any quicker Big Grin
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Angie Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
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Treatment: 45mg Stelara
#12
Sun-01-03-2020, 19:09 PM
Good luck Fred .

Wave
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#13
Sun-01-03-2020, 20:58 PM
(Sun-01-03-2020, 19:09 PM)Angie Wrote: Good luck Fred .

Wave

Thank you Angie. Wave
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artemie Offline
Be careful about reading health books, you might die of a misprint

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Treatment: Diet started 22th july 2019
#14
Wed-04-03-2020, 17:17 PM
Good luck, Fred! I'll be following your updates with interest.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#15
Wed-04-03-2020, 20:07 PM
(Wed-04-03-2020, 17:17 PM)artemie Wrote: Good luck, Fred! I'll be following your updates with interest.

Thank you Artemie. Smile
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
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Joined: Dec 2014
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Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#16
Thu-05-03-2020, 18:43 PM
Best of luck Fred I do hope that it works for you, I will follow with interest .
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,208
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Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#17
Thu-05-03-2020, 21:32 PM
(Thu-05-03-2020, 18:43 PM)D Foster Wrote: Best of luck Fred I do hope that it works for you, I will follow with interest .

Thank you Dave, it will be interesting to see if it helps the psoriatic arthritis. I'm not so bothered about the psoriasis, but as Cosentyx had stopped helping the psoriatic arthritis I feel I have nothing to lose by giving it a try.
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#18
Fri-06-03-2020, 00:08 AM
(Thu-05-03-2020, 21:32 PM)Fred Wrote:
(Thu-05-03-2020, 18:43 PM)D Foster Wrote: Best of luck Fred I do hope that it works for you, I will follow with interest .

Thank you Dave, it will be interesting to see if it helps the psoriatic arthritis. I'm not so bothered about the psoriasis, but as Cosentyx had stopped helping the psoriatic arthritis I feel I have nothing to lose by giving it a try.

Still using the Stelara but I am losing ground a little so I will be watching your progress Fred.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#19
Sat-07-03-2020, 22:18 PM
One week update. I think it is a good idea to give more regular updates when starting a new treatment as it has helped me in the past to look back.

Not a great deal has changed, but it is definitely kicking in as the psoriasis is a little less flaky and the psoriatic arthritis is very slightly easing. I know these signs from my use of bio's for around 12 years, and it is starting to work.

Looking back on my first post I mentioned a few things before taking my first shot, so I will update on those points but leave my scores as they are.

#1 The mild cold feeling has gone.

#2 The upset stomach did get a little worse and there was the odd moment that I felt I may not make it to the toilet, but that now seems to be calming down. So I can't say it was the Tremfya.

#3 The itchy redness did get better, but annoyingly still tries to pop back. Though having said that it is not as bad as it was.

Early days, but so far it looks like it is heading in the right direction.
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jiml Offline
100 + Member I Just Cant Stop !

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Treatment: Skilarence 5x120mg a day
#20
Sat-07-03-2020, 22:40 PM
(Sat-07-03-2020, 22:18 PM)Fred Wrote: One week update. I think it is a good idea to give more regular updates when starting a new treatment as it has helped me in the past to look back.

Not a great deal has changed, but it is definitely kicking in as the psoriasis is a little less flaky and the psoriatic arthritis is very slightly easing. I know these signs from my use of bio's for around 12 years, and it is starting to work.

Looking back on my first post I mentioned a few things before taking my first shot, so I will update on those points but leave my scores as they are.

#1 The mild cold feeling has gone.

#2 The upset stomach did get a little worse and there was the odd moment that I felt I may not make it to the toilet, but that now seems to be calming down. So I can't say it was the Tremfya.

#3 The itchy redness did get better, but annoyingly still tries to pop back. Though having said that it is not as bad as it was.

Early days, but so far it looks like it is heading in the right direction.
That sounds promising fred lets hope it continues to improve and you get the arthritis under control as well as the plaques

Let's hope the annoying itchy bumps disappear as well
Great update Thumb
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