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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Tremfya for psoriatic arthritis Fred's journey

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Tremfya for psoriatic arthritis Fred's journey
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#41
Sat-04-04-2020, 21:30 PM
(Sat-04-04-2020, 18:14 PM)Caroline Wrote:
(Sat-04-04-2020, 17:54 PM)jiml Wrote: I thought it was caused by the  herpes simplex virus and not bacteria

O yeah,,, that is true indeed.... Doh

Anyway, Mrs Fred appears to be resistant to that virus.  Big Grin

Yes it is herpes simplex. All of my family have had it, I can remember it as a child.

I'll get over it as I always do, but as it's on the list of side effects of Tremfya I made my note for future reference.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#42
Tue-14-04-2020, 20:08 PM
Note for reference: 14 April 3 weeks after last shot.

The cold sore has just about gone, but I have the feeling another one is starting.

Also the mild cold like feeling has come back. I have a couple of new patches of psoriasis on my hands, and an existing one on the right side of my torso has got a little bigger.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#43
Tue-14-04-2020, 20:54 PM
But your Psoriatic Arthritis still under control ?
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#44
Tue-14-04-2020, 20:56 PM
(Tue-14-04-2020, 20:54 PM)Caroline Wrote: But your Psoriatic Arthritis still under control ?

Yes. I do get the odd moment, but so far it's ok.
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#45
Tue-14-04-2020, 20:57 PM
(Tue-14-04-2020, 20:56 PM)Fred Wrote:
(Tue-14-04-2020, 20:54 PM)Caroline Wrote: But your Psoriatic Arthritis still under control ?

Yes. I do get the odd moment, but so far it's ok.

Okay, it is important to keep that steady.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#46
Tue-14-04-2020, 21:01 PM
(Tue-14-04-2020, 20:57 PM)Caroline Wrote:
(Tue-14-04-2020, 20:56 PM)Fred Wrote:
(Tue-14-04-2020, 20:54 PM)Caroline Wrote: But your Psoriatic Arthritis still under control ?

Yes. I do get the odd moment, but so far it's ok.

Okay, it is important to keep that steady.

Yep. I'm hoping the problems I'm getting are just my body getting used to Tremfya.

Next appointment in August, and it's still early days.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#47
Tue-14-04-2020, 21:09 PM
(Tue-14-04-2020, 21:01 PM)Fred Wrote:
(Tue-14-04-2020, 20:57 PM)Caroline Wrote:
(Tue-14-04-2020, 20:56 PM)Fred Wrote:
(Tue-14-04-2020, 20:54 PM)Caroline Wrote: But your Psoriatic Arthritis still under control ?

Yes. I do get the odd moment, but so far it's ok.

Okay, it is important to keep that steady.

Yep. I'm hoping the problems I'm getting are just my body getting used to Tremfya.

Next appointment in August, and it's still early days.

I can imagine that it is always a bit scary to wait if a new bio is going to work and of course in your situation also for how long it will keep working.
I myself would be very stressed in that situation. Can you deal a bit with that?
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#48
Tue-14-04-2020, 21:13 PM
(Tue-14-04-2020, 21:09 PM)Caroline Wrote: I can imagine that it is always a bit scary to wait if a new bio is going to work and of course in your situation also for how long it will keep working.
I myself would be very stressed in that situation. Can you deal a bit with that?

Yes unless things go bad like they did with the TNF's , but I doubt it will. So I will carry on till August which will be 6 months and go from there.

Got to give these things a fair try. Thumb
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#49
Tue-14-04-2020, 21:18 PM
(Tue-14-04-2020, 21:13 PM)Fred Wrote:
(Tue-14-04-2020, 21:09 PM)Caroline Wrote: I can imagine that it is always a bit scary to wait if a new bio is going to work and of course in your situation also for how long it will keep working.
I myself would be very stressed in that situation. Can you deal a bit with that?

Yes unless things go bad like they did with the TNF's , but I doubt it will. So I will carry on till August which will be 6 months and go from there.

Got to give these things a fair try.  Thumb

Certainly you do ! Thumb

I’m off Wave Sleep well
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#50
Tue-14-04-2020, 21:22 PM
(Tue-14-04-2020, 21:18 PM)Caroline Wrote:
(Tue-14-04-2020, 21:13 PM)Fred Wrote:
(Tue-14-04-2020, 21:09 PM)Caroline Wrote: I can imagine that it is always a bit scary to wait if a new bio is going to work and of course in your situation also for how long it will keep working.
I myself would be very stressed in that situation. Can you deal a bit with that?

Yes unless things go bad like they did with the TNF's , but I doubt it will. So I will carry on till August which will be 6 months and go from there.

Got to give these things a fair try.  Thumb

Certainly you do !  Thumb

I’m off  Wave  Sleep well

Night Night Caroline. Sleep
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