Glenda's journey with prescribed treatments

[Kat]

You and your husband are going through a lot right now. I'll keep you both in my thoughts and prayers.

From what I understand of it, liver disease is an issue with certain medications. I know too much of some types of over the counter meds can cause issues as well if you exceed x amount in a day. Hopefully your doctors can work with you to change your meds where you can still get relief, but not cause further damage to your liver. And if you take over the counter meds, make sure your doctor has a list of them as well!

[jiml]

Yes I agree Glenda it might be time to ask for a change to cosentyx it's unlikely to upset your stomach problems but ask you dermatologist next time you see them

My thoughts are with you and Rich and hope his treatment works on his cancer

[jiml]

Glenda has asked me to post this

[glenda grant]

Glenda has asked me to post this and she will write about it shortly. Please don't reply until she has added her bit

Hello to all I had Jim post my photo’s for me as I am not good at it!
My psoriasis is the worst it has ever been all my Dr’s are closed so I have to suffer.
I can barely sleep my skin hurts so bad I was just taken off Embrel
I also found out I have cirrhosis and I very seldom drink and now I
Maybe the Embrel caused me to have cirrhosis it’s is scary to me.

[jiml]

Glenda has asked me to post this

Hello to all I had Jim post my photo’s for me as I am not good at it!
  My psoriasis is the worst it has ever been all my Dr’s are closed so I have to suffer.
  I can barely sleep my skin hurts so bad I was just taken off Embrel
    I also found out I have cirrhosis and I very seldom drink and now I
    Maybe the Embrel caused me to have cirrhosis it’s is scary to me.

Such a shame your doctor's is closed Glenda
Do you use coconut oil to moisturise the plaques it might make it more tolerable

[glenda grant]

Glenda has asked me to post this and she will write about it shortly. Please don't reply until she has added her bit

Hello to all I had Jim post my photo’s for me as I am not good at it!
  My psoriasis is the worst it has ever been all my Dr’s are closed so I have to suffer.
  I can barely sleep my skin hurts so bad I was just taken off Embrel
    I also found out I have cirrhosis and I very seldom drink and now I
    Maybe the Embrel caused me to have cirrhosis it’s is scary to me.

Such a shame your doctor's is closed Glenda
Do you use coconut oil to moisturise the plaques it might make it more tolerable

I have been using all kinds of creams coconut oil,Vitamin E prescription creams from my Dermatologist.I soak in the tub with epson salts nothing is helping me. They look like welts then get covered in plaques.

[Fred]

I wouldn't have thought the Enbrel caused the cirrhosis Glenda.

It's shame your doctors is closed, could you get in touch with them on the phone or via email ?

As you have a bathtub can you get hold of some Wheat Starch ? They gave me baths with that in hosiptal once and it helped a lot. Not sure where you would buy it though.

Hope you get to see a doctor soon, and when you do I would suggest you ask about Stelara, Cosentyx or Tremfya.

Good luck

Fred.

[KatT]

I used pure shea butter back when I had plaques .....it helped a bit

Hope you can reach your doctor soon and get started on a treatment that suits you

Good luck Glenda

[glenda grant]

I wouldn't have thought the Enbrel caused the cirrhosis Glenda.

It's shame your doctors is closed, could you get in touch with them on the phone or via email ?

As you have a bathtub can you get hold of some Wheat Starch ? They gave me baths with that in hosiptal once and it helped a lot. Not sure where you would buy it though.

Hope you get to see a doctor soon, and when you do I would suggest you ask about Stelara, Cosentyx or Tremfya.

Good luck

Fred.

Thanks so much for telling me about the wheat starch its at our grocery store will get some tomorrow!

[glenda grant]

You and your husband are going through a lot right now.  I'll keep you both in my thoughts and prayers.

From what I understand of it, liver disease is an issue with certain medications.  I know too much of some types of over the counter meds can cause issues as well if you exceed x amount in a day.  Hopefully your doctors can work with you to change your meds where you can still get relief, but not cause further damage to your liver.  And if you take over the counter meds, make sure your doctor has a list of them as well! 

Thanks Kat it's true pills mess with the liver but i stay away from tylenol and advil.