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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Tremfya for psoriatic arthritis Fred's journey

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Tremfya for psoriatic arthritis Fred's journey
KatT Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 5,775
Threads: 50
Joined: Sep 2019
Gender: Female
Location: Canada
Psoriasis Score: 1
Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + hydroxychloroquine + MTX
#191
Sat-27-03-2021, 02:44 AM
It's good that it's getting better  Clap  

If you compare to other treatments, were you having flares like this?
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#192
Sat-27-03-2021, 12:43 PM
(Sat-27-03-2021, 02:44 AM)KatT Wrote: It's good that it's getting better  Clap  

If you compare to other treatments, were you having flares like this?

Than you KatT. Yes I used to get flares with other bios, but for the moment with Tremfya they don't seem to last long.

Smile
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#193
Sat-27-03-2021, 15:47 PM
(Sat-27-03-2021, 12:43 PM)Fred Wrote:
(Sat-27-03-2021, 02:44 AM)KatT Wrote: It's good that it's getting better  Clap  

If you compare to other treatments, were you having flares like this?

Than you KatT. Yes I used to get flares with other bios, but for the moment with Tremfya they don't seem to last long.

Smile

It's strange how each person reacts to the same treatment, I have had no problems with P flares on Stelara but had problems with PsA .
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,208
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Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#194
Sat-27-03-2021, 17:27 PM
(Sat-27-03-2021, 15:47 PM)D Foster Wrote:
(Sat-27-03-2021, 12:43 PM)Fred Wrote:
(Sat-27-03-2021, 02:44 AM)KatT Wrote: It's good that it's getting better  Clap  

If you compare to other treatments, were you having flares like this?

Than you KatT. Yes I used to get flares with other bios, but for the moment with Tremfya they don't seem to last long.

Smile

It's strange how each person reacts to the same treatment, I have had no problems with P flares on Stelara but had problems with PsA .

At the moment with Tremfya it's only the psoriatic arthritis that flares, but it's not often and soon goes.
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Kat Offline
Take my advice; I don't use it anyway.

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Posts: 9,829
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Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#195
Sat-03-04-2021, 21:55 PM
Playing catch up on some posts, glad you're getting better Fred. Are you back to normal (well as normal as you get Tongue ) yet?
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#196
Sat-03-04-2021, 22:02 PM
(Sat-03-04-2021, 21:55 PM)Kat Wrote: Playing catch up on some posts, glad you're getting better Fred.  Are you back to normal (well as normal as you get  Tongue ) yet?

Hello Kat, yes back to normal for me  Big Grin

Having said that I have had a bit of a problem with my right ankle again, but I think it is due to being lazy. It is getting busy in the garden and I'm back to walking 1Km each day, plus I have cut down a bit on the Merlot during the week. I'm thinking because I have put on a couple of Kilos over Winter it is not helping, so I'm trying to get rid of them.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,208
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Treatment: Bimzelx / Coconut Oil
#197
Mon-03-05-2021, 19:12 PM
Had to put the psoriatic arthritis score up from 2 to 7 Confused

The ankle problem came back again and unlike last time it didn't go away after a couple of days, instead it has taken around 4 weeks and it's still not perfect. It was a lot more painful this time too and walking needed the support of a stick, something I haven't needed for the past year.

I'm also experiencing problems with my hands. Mostly in the knuckles and I'm finding it difficult to do things like open a jar or putting weight on my hands whilst in the garden. I was hoping after my shot a week ago that it would start getting better again but it's not so it looks like Tremfya could be going the way of the others and can no longer keep the psoriatic arthritis away like it did when I first started it.

Psoriasis is good and still on a score of 2, sometimes I could score 1 so it's working very well there.

I'm going to continue with Tremfya rather than call my dermatologist and see how it goes, it's not unbearable and I can live with it at the moment but it's not looking good.

Next appointment in September
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#198
Mon-03-05-2021, 19:50 PM
I hope that it starts to improve Fred , the warmer weather is on its way which may help.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,208
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Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#199
Mon-03-05-2021, 19:56 PM
(Mon-03-05-2021, 19:50 PM)D Foster Wrote: I hope that it starts to improve Fred , the warmer weather is on its way which may help.

Thank you Dave, yes I'm hoping the weather will help.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Treatment: Got back to DMF slow release
#200
Mon-03-05-2021, 19:59 PM
Does not look good Fred.
But I do remember that I had also kind of a flare up a month ago. That is slowly going down now.
Perhaps you lag a bit behind, and perhaps it takes a bit longer to pass.
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