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Psoriasis Club › HealthHealth Boards › Introductions v
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Hi from Texas

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Hi from Texas
Itchygirl42 Offline
Novice


Posts: 5
Threads: 3
Joined: Jul 2021
Gender: Female
Location: Texas
Treatment: TALTZ
#1
Wed-07-07-2021, 15:48 PM
Hey, everyone. I’ve never been in a forum before, so I hope I’m doing this right (not over sharing or whatever ) Confused .

My skin issues started in 2019, with scaly crinkly skin under my eyes and around my mouth… and also on the lady bits (hence the concern with over sharing). I had no idea wtf was happening because while I’d dealt with occasional eczema patches between my fingers, at 42 years old I’d never had anything like psoriasis. Also, it’s not in my family. 

I had just stopped using a very strong cortisone cream. I think using it for so long (which apparently I wasn’t supposed to do) and then quitting it is what triggered an autoimmune disorder that most resembles inverse psoriasis down below and plaque psoriasis on my face. Which is why I’m here. 

My latest doc got me on TALTZ. I’ll go to the treatment page to ask questions about that. 

But as far as intros go: I’m 42, married (though I cannot fathom why he hasn’t hit the door yet since my issues have kept us from…. Over sharing again, sorry). I have 3 kids. 

Anyway, I hope to not feel so alone by talking to other people who deal with this, as well as get answers about how to cope.  Blush
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Wed-07-07-2021, 16:00 PM
Hello Itchygirl42  Welcome to Psoriasis Club.

Don't worry about it being your first time using a forum, you will find a very friendly bunch of members so just shout out if you get stuck and someone will soon jump in to help or you can get help here Staff

We have members only boards if you prefer keeping things away from the public domain, you can find [Group Specific] here it's a good way to get to know our members and once you have made 10 posts you can have your own journal if you wish.

Taltz has had good reports from our members, you can put it in the Search facility (whilst logged-in) and you will find a lot of information, but don't hesitate to start as many threads as you wish with your questions.

I would say your husband is still there because like most of us our loved ones want to to help, it's good to have family support but they can't understand how you feel. Though you should keep sharing with them, and we are always here for support if you need us. Smile

Regards.

Fred.
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#3
Wed-07-07-2021, 17:03 PM
Hi Itchygirl,

Welcome to psoriasisclub. Wave

Don’t worry, we all started like you in using a forum, it will become easier and easier, very rapidly.

I don’t understand what you mean by kept you from… and 3 kids, what kept you from what Huh ? Maybe it is because I am Dutch that I do not understand these subtleties. Whistle

Wave
Caroline
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#4
Wed-07-07-2021, 17:13 PM
Hi and welcome, it’s nice to meet you Wave

You have every sympathy, not a nice place to get psoriasis..
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#5
Wed-07-07-2021, 18:45 PM
Hi itchy welcome to the club. You've certainly got psoriasis in awkward places. I hated getting it on my face and can imagine how uncomfortable it must be to have it in the genital area. However I'm hopeful that the taltz will give you clearance and you can get back to what you have been kept from  Wink
I hope you enjoy the forum which is run by sufferers who are all friendly and understand the pressures it can put you under.
Just shout if you have any questions and I'm sure some of our members will have a try at answering
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#6
Wed-07-07-2021, 20:31 PM
(Wed-07-07-2021, 17:13 PM)Turnedlight Wrote: Hi and welcome, it’s nice to meet you  Wave

You have every sympathy, not a nice place to get psoriasis..
Hi Itchygirl and a warm welcome to our club  Wave.

After being exposed to some of Grizzlys photos and trust me they will leave you disturbed forever (they are something you cannot un-see), there is no such thing as too much or over sharing on this forum but as Fred says you might find it more comfortable on one of the members only boards.

I am finding it increasingly annoying the lack of warnings people get when using steroid topical, there should be big warning notices on the boxes. 

Get stuck in have a good wander around, if you are lucky Jim might have given the bar a bit of a dusting. We have some nice gins in at the moment.

There is also a monthly newsletter if you wish to subscribe

JohnB
Raxyl Offline
100 + Member living the dream

100 + Member I Just Cant Stop !
Posts: 7,405
Threads: 35
Joined: Nov 2017
Gender: Male
Location: Launceston, Tasmania
Psoriasis Score: 2
Treatment: Cosentyx
#7
Thu-08-07-2021, 00:28 AM
Hello Ichygirl, welcome to the forum we are a friendly bunch and there is plenty of great info here along with a wealth of knowledge within the members.  I hope the Taltz works for you, it is one of the few I haven't tried over the years.

We are all here for each other so jump right in and share as much or as little as you feel comfortable sharing.

Craig
KatT Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 5,775
Threads: 50
Joined: Sep 2019
Gender: Female
Location: Canada
Psoriasis Score: 1
Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + hydroxychloroquine + MTX
#8
Thu-08-07-2021, 04:03 AM
Hi Itchygirl,

Welcome to the psoriasis club


Not a good place to have psoriasis  Confused  I really hope Taltz works for you.  I am surprised he didn't start you on methotrexate.  That is usually the starting point or protocol.  You are lucky to be able to start with something better!  

Your hubby is still there because he loves you and wants to support you  Smile  

You will see we are a friendly bunch and here to support each other!
YvonS Offline
Member


Posts: 84
Threads: 4
Joined: Nov 2020
Gender: Female
Location: Tulip Country
Treatment: etoricoxib
#9
Thu-08-07-2021, 10:44 AM
Hy Itchygirl,

Welcome!

I'm also new over here and trying to figure out how everything works. But I am well supported by everyone, so do not worry, so will you.
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#10
Thu-08-07-2021, 20:48 PM
Hi Itchy girl, we are all in the same boat here and everyone understands the problems because they are going through similar themselves or have done.
Welcome to the friendliest site on the internet.
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