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Tremfya for psoriatic arthritis Fred's journey

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Tremfya for psoriatic arthritis Fred's journey
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#301
Tue-27-07-2021, 17:27 PM
Yes at least it's improving, what did you have by the way regards the jab.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#302
Tue-27-07-2021, 20:23 PM
(Tue-27-07-2021, 16:58 PM)jiml Wrote: Whatever the reason Fred it's great to know the flare is fading away  Thumb

Yes in some ways it's good, but I still don't know for certain if it was the covid jab.

(Tue-27-07-2021, 17:27 PM)D Foster Wrote: Yes at least it's improving, what did you have by the way regards the jab.

I had three jabs of Pfizer: #1 followed by #2 six weeks later followed by #3 another 4 weeks after #2. So in 10 weeks I have had 3 Pfizer jabs.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
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Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#303
Tue-27-07-2021, 21:19 PM
Still it is very interesting the possible relation to the jab…
One thing is for sure, the jab is certainly doing something to one’s immune system.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#304
Tue-27-07-2021, 21:26 PM
(Tue-27-07-2021, 21:19 PM)Caroline Wrote: Still it is very interesting the possible relation to the jab…
One thing is for sure, the jab is certainly doing something to one’s immune system.

Yes I think so. This is my first time taking any flu / covid jab so it's all new to me, but I'm thinking the virus jab made things worse. Is that good or bad ? only time will tell.

Should I have gone for it ? Mmmmmmmmmmmmmmm sometimes I think no and I still refuse the usual flu jab, but this one got me thinking hard about being seriously ill so I went for it.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#305
Tue-27-07-2021, 21:30 PM
(Tue-27-07-2021, 21:26 PM)Fred Wrote:
(Tue-27-07-2021, 21:19 PM)Caroline Wrote: Still it is very interesting the possible relation to the jab…
One thing is for sure, the jab is certainly doing something to one’s immune system.

Yes I think so. This is my first time taking any flu / covid jab so it's all new to me, but I'm thinking the virus jab made things worse. Is that good or bad ? only time will tell.

Should I have gone for it ? Mmmmmmmmmmmmmmm sometimes I think no and I still refuse the usual flu jab, but this one got me thinking hard about being seriously ill so I went for it.

Yes, I think a bit alike you.. I normally don’t get a flu jab of course, but this pandemic was too serious for me to refuse the jab.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,208
Threads: 3,902
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Gender: Male
Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#306
Tue-27-07-2021, 21:32 PM
(Tue-27-07-2021, 21:30 PM)Caroline Wrote:
(Tue-27-07-2021, 21:26 PM)Fred Wrote:
(Tue-27-07-2021, 21:19 PM)Caroline Wrote: Still it is very interesting the possible relation to the jab…
One thing is for sure, the jab is certainly doing something to one’s immune system.

Yes I think so. This is my first time taking any flu / covid jab so it's all new to me, but I'm thinking the virus jab made things worse. Is that good or bad ? only time will tell.

Should I have gone for it ? Mmmmmmmmmmmmmmm sometimes I think no and I still refuse the usual flu jab, but this one got me thinking hard about being seriously ill so I went for it.

Yes, I think a bit alike you.. I normally don’t get a flu jab of course, but this pandemic was too serious for me to refuse the jab.

Only time will tell Tiger.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Psoriatic Arthritis Score: 1
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#307
Sat-14-08-2021, 11:02 AM
Time for an update. If you have been following this thread you will know that I was starting to think this past few months that Tremfya was failing, today I reached the point of make my mind up as it's time for my next shot.

I have an appointment in 4 weeks time and I have to decide to take the shot or leave it and see if I can try something else. If I take the shot I can't change for 8 weeks, if I don't take the shot I can try something else.  91

Well I have decided to take the shot and I'm glad I didn't phone my dermatologist for an earlier appointment as I'm feeling great.

Psoriatic arthritis score has gone down from 3 to 1 and the one is only because I still have a little bit of inflammation in the right ankle (but that could be fluid) some mornings my right arm feels a little stiff, but it's always been dodgy and it soon passes. So as I'm taking Tremfya mainly for psoriatic arthritis I see no reason to stop.

Psoriasis score stays on 1 but that is just for a small patch on each shin, it's not flaky but you can see it is still there, my shins have always been to worse.

I still don't know what caused the flare-up and I will discuss it with my dermatologist to see what she thinks, but it's looking more and more likely that it was the Covid jabs after all.

Shot done, feeling good, next appointment in 4 weeks and go from there. Smile
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Wooley Offline
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
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Location: Spain
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#308
Sat-14-08-2021, 13:28 PM
That's good news Fred that your score has gone down  Thumb

Great that you are feeling good too - really pleased for you!
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#309
Sat-14-08-2021, 13:48 PM
(Sat-14-08-2021, 13:28 PM)Wooley Wrote: That's good news Fred that your score has gone down  Thumb

Great that you are feeling good too - really pleased for you!

Thank you Wooley Smile
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#310
Sat-14-08-2021, 13:50 PM
Brilliant Fred, could very well be the vaccine shots that upset the status quo.
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