Hey fellow sufferers

[longtime sufferer]

Hey everyone new to this forum but not in regards to P.
I thought I would share my experience with you after starting Acitretin Aug 2014.
Suffered since age 12 and as a veteran of the vast array of meds on offer I am now at the stage of trying Acitretin. My P by the way is on the high end of moderate bordering on severe. Apparently, after bloods, cholestorol etc I am an ideal candidate. This is my second attempt at an oral drug as I reacted adversely to ciclosporin. I will share with you any side effects and effects on skin.
Day 1: 35mg Acitretin taken after breakfast, started to develop a pressure headache, foggy feeling and this didn't stop only respite is when asleep, nightmare.
Day 2: Same strict routine and again now a hazy headache not very alert, with a foggy feeling, after a nap feel brighter continued throughout day again nightmare.
Day 3: Headaches don't seem to be there today no pain and it seems the fogginess is going feel more brighter than last two days. Not sure whether related but my IBS flared badly in the am.
No significant change in skin or anything else will try and update again further along. However, I live in hope this treatment may help me but don't hold out much optimism considering years trying other treatments that have failed, anyway we will see.

[jiml]

Hi longtime sufferer and to the forum. Thanks for your introduction and your current experience. You will find a great deal of support here, we are a small but friendly bunch of psoriasis sufferers, who are happy to share our experiences and discuss our treatments. And offer each other support when things go wrong.
I really hope your treatment works and I'm pleased the headaches have subsided...........
I think a great help along with the treatment is positivity, I believe if you believe in what you are taking it has a better chance of working, Acetretin is not an instant fix, but as long as you are coping with the side effects keep going, your skin may be slow to respond but the Acetretin is probably working on the inside,........ do stay positive
We also spend a bit of time in the off topic section when we want to lighten the mood you are very welcome to join us in there for some light hearted banter anytime. It's a good place to be with people who understand just jump in
Look forward to your updates

[longtime sufferer]

Hi longtime sufferer and to the forum. Thanks for your introduction and your current experience. You will find a great deal of support here, we are a small but friendly bunch of psoriasis sufferers, who are happy to share our experiences and discuss our treatments. And offer each other support when things go wrong.
I really hope your treatment works and I'm pleased the headaches have subsided...........
I think a great help along with the treatment is positivity, I believe if you believe in what you are taking it has a better chance of working, Acetretin is not an instant fix, but as long as you are coping with the side effects keep going, your skin may be slow to respond but the Acetretin is probably working on the inside,........ do stay positive
We also spend a bit of time in the off topic section when we want to lighten the mood you are very welcome to join us in there for some light hearted banter anytime. It's a good place to be with people who understand just jump in
Look forward to your updates

Thanks Jiml and will do

[longtime sufferer]

Hi longtime sufferer and to the forum. Thanks for your introduction and your current experience. You will find a great deal of support here, we are a small but friendly bunch of psoriasis sufferers, who are happy to share our experiences and discuss our treatments. And offer each other support when things go wrong.
I really hope your treatment works and I'm pleased the headaches have subsided...........
I think a great help along with the treatment is positivity, I believe if you believe in what you are taking it has a better chance of working, Acetretin is not an instant fix, but as long as you are coping with the side effects keep going, your skin may be slow to respond but the Acetretin is probably working on the inside,........ do stay positive
We also spend a bit of time in the off topic section when we want to lighten the mood you are very welcome to join us in there for some light hearted banter anytime. It's a good place to be with people who understand just jump in
Look forward to your updates

Thanks Jiml and will do

[slm]

Hello. Welcome. I hope your new treatment is successful. I will read your posts with interest.

[Kat]

Welcome to the forum! I'm also on Acitretin but only reaching the 2 week mark. This forum has nice, informative and supportive people. I hope you will keep us updated and just know that you are not alone.

[longtime sufferer]

Hello. Welcome. I hope your new treatment is successful. I will read your posts with interest.

Thanks Slm

[longtime sufferer]

Welcome to the forum! I'm also on Acitretin but only reaching the 2 week mark. This forum has nice, informative and supportive people. I hope you will keep us updated and just know that you are not alone.

Hey Kat thanx for reply have you had any side effects on this drug ? I know Acitretin takes 2-3mths to see any differences in skin do you see any changes yet ?

[Kat]

Welcome to the forum! I'm also on Acitretin but only reaching the 2 week mark. This forum has nice, informative and supportive people. I hope you will keep us updated and just know that you are not alone.

Hey Kat thanx for reply have you had any side effects on this drug ? I know Acitretin takes 2-3mths to see any differences in skin do you see any changes yet ?

I did have a small headache the first two days but not sure if it was a side effect or just a headache. Other than that, no side effects at all. I have noticed that I am less itchy. I still itch quite a bit, but not as bad as I was. I also had a day (not sure why but it didn't last) where my ears almost cleared up but then they started scaling again. I'm on UVB light treatments as well. So, all in all, I'm seeing slight improvements but not far enough along in the treatment yet to know for sure if this is what's going to work for me. But I've got my fingers crossed, crossing them for you too!

[Caroline]

Hello LS,

Welcome to our lovely forum.
Enjoy yourself, read, ask, answer, we are open to anything.

Caroline