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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Ilumetri for psoriatic arthritis Fred's journey

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Ilumetri for psoriatic arthritis Fred's journey
KatT Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
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Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + hydroxychloroquine + MTX
#121
Wed-23-02-2022, 01:55 AM
Compared to other treatments, do you feel that at that time in the treatment, your scores were better or about the same?
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
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Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#122
Wed-23-02-2022, 14:43 PM
(Wed-23-02-2022, 01:55 AM)KatT Wrote: Compared to other treatments, do you feel that at that time in the treatment, your scores were better or about the same?

Quite an interesting question Fred.
Compared to Stelara especially how does the present treatment stackup.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#123
Wed-23-02-2022, 14:56 PM
(Wed-23-02-2022, 14:43 PM)D Foster Wrote:
(Wed-23-02-2022, 01:55 AM)KatT Wrote: Compared to other treatments, do you feel that at that time in the treatment, your scores were better or about the same?

Quite an interesting question Fred.
Compared to Stelara especially how does the present treatment stackup.

You have to remember that I went on Stelara around 12 years ago and I'm sure over that time the psoriatic arthritis has gotten worse, but so far I would say that Ilumetri is better than any bio I have been on. Didn't start the scoring till 2015 so difficult to be precise.

Not so bad today. Smile
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#124
Wed-23-02-2022, 15:31 PM
(Wed-23-02-2022, 14:56 PM)Fred Wrote:
(Wed-23-02-2022, 14:43 PM)D Foster Wrote:
(Wed-23-02-2022, 01:55 AM)KatT Wrote: Compared to other treatments, do you feel that at that time in the treatment, your scores were better or about the same?

Quite an interesting question Fred.
Compared to Stelara especially how does the present treatment stackup.

You have to remember that I went on Stelara around 12 years ago and I'm sure over that time the psoriatic arthritis has gotten worse, but so far I would say that Ilumetri is better than any bio I have been on. Didn't start the scoring till 2015 so difficult to be precise.

Not so bad today.  Smile

I have been on Stelara now for around ten years roughly and I think that I am losing ground now probably not enough to change yet but definitely losing it . I have been on ten weeks between shots for some time and I can see the signs so that's the reason I ask.
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Fred Offline Author
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#125
Wed-23-02-2022, 20:08 PM
(Wed-23-02-2022, 15:31 PM)D Foster Wrote: I have been on Stelara now for around ten years roughly and I think that I am losing ground now probably not enough to change yet but definitely losing it . I have been on ten weeks between shots for some time and I can see the signs so that's the reason I ask.

We are all different Dave and as you know some treatments work well for some but not others. For me Stelara was good but as the psoriatic arthritis got worse it just couldn't cope, Cosentyx and Tremfya worked better than Stelara but they too failed.
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jiml Offline
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#126
Wed-23-02-2022, 22:42 PM
Glad it's a bit better today Fred and hope it's the weather causing the flares rather than the Ilumetri failing, with summer weather getting closer it will hopefully continue to improve Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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#127
Thu-24-02-2022, 12:55 PM
(Wed-23-02-2022, 22:42 PM)jiml Wrote: Glad it's a bit better today Fred and hope it's the weather causing the flares rather than the Ilumetri failing, with summer weather getting closer it will hopefully continue to improve  Thumb

Thank you Jim, yes it looks like it's more a weather thing. Playing up a little today and it's gone damp again.
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KatT Offline
100 + Member I Just Cant Stop !

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Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + hydroxychloroquine + MTX
#128
Fri-25-02-2022, 01:36 AM
Interesting!  I thought Cosentyx worked better for you.....until it failed
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,217
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Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#129
Fri-25-02-2022, 13:31 PM
(Fri-25-02-2022, 01:36 AM)KatT Wrote: Interesting!  I thought Cosentyx worked better for you.....until it failed

It did at first and probably quicker, but again it was a while ago and I think the psoriatic arthritis has got worse with age. It's still early days with Ilumetri so time will tell. Smile
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,217
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#130
Fri-04-03-2022, 21:38 PM
Note for reference. Damp again today but the psoriatic arthritis is no worse, so it looks like flare ups are what is giving me the problems.

Psoriatic arthritis score down from 6 to 4

Appointment next month.
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