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Ilumetri for psoriatic arthritis Fred's journey

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Ilumetri for psoriatic arthritis Fred's journey
Forest Walker Offline
100 + Member I'd Rather Be Roller Skating

100 + Member I Just Cant Stop !
Posts: 9,536
Threads: 129
Joined: Aug 2021
Gender: Female
Location: Northern Washington State
Treatment: Humira, Moisturizers, Triamcinolonoe Acetonide
#271
Wed-09-11-2022, 14:50 PM
I hope the good dermatologist helps you into a different set of rheumatology doctors.  Too bad the health system won't cover merlot as pharmaceutical.  There is medical marijuana, after all.  Ought to be medical merlot, as well.
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#272
Wed-09-11-2022, 14:52 PM
And I thought that the NHS were bad.
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Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,217
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#273
Wed-09-11-2022, 15:02 PM
(Wed-09-11-2022, 14:50 PM)Forest Walker Wrote: I hope the good dermatologist helps you into a different set of rheumatology doctors.  Too bad the health system won't cover merlot as pharmaceutical.  There is medical marijuana, after all.  Ought to be medical merlot, as well.

Unfortunately she has to recommend the hospital, she is giving it one more try if I don't get an appointment she said to take her letters to one outside the hospital.

I'll campaign for medical merlot.

[Image: votefred.gif]

(Wed-09-11-2022, 14:52 PM)D Foster Wrote: And I thought that the NHS were bad.

It's the only department I have ever had problems with, but it's mostly my fault as I'm not interested in talking with them about psoriatic arthritis.
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Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,217
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#274
Fri-02-12-2022, 21:43 PM
Ok this is not what I expected, not only is Ilumetri failing I'm now thinking it was making things worse.

Psoriasis score went up from 6 to 8 two weeks ago but now it's down to 4.

Psoriatic arthritis score went up from 15 to 21 two weeks ago but now it's 7.

I have no other explanation than it worked great at first but then made things worse as my body got used to it, I'm going to have to say this is the worst bio I have ever tried.

They did say it was a slow worker, but it's no good being slow if it can't continue doing the job it should be doing.

Fail  Thumbsdown

Soon be moving to Bimzelx and looking forward to it.
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mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,340
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#275
Fri-02-12-2022, 23:28 PM (This post was last modified: Fri-02-12-2022, 23:28 PM by mataribot.)
I feel the same way about Tremfya. Worked good with psoriasis, but not much for PSA. I was late with one dose, and then everything simple got worse. I hope Bimzelx is better for you.
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Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,217
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#276
Sat-03-12-2022, 14:10 PM
(Fri-02-12-2022, 23:28 PM)mataribot Wrote: I feel the same way about Tremfya. Worked good with psoriasis, but not much for PSA. I was late with one dose, and then everything simple got worse. I hope Bimzelx is better for you.

Thank you Mata. Thumb
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#277
Sat-03-12-2022, 16:28 PM
I'll keep my fingers crossed for you Fred, just hope that you will have a good outcome. Mrs Dave says will it improve your music choice.
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Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,217
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#278
Sat-03-12-2022, 21:31 PM
(Sat-03-12-2022, 16:28 PM)D Foster Wrote: I'll keep my fingers crossed for you Fred, just hope that you will have a good outcome. Mrs Dave says will it improve your music choice.

Thank you Dave.

Tell her nothing could improve my music choices a I already listen to the best. Tongue
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#279
Sat-03-12-2022, 21:32 PM
(Sat-03-12-2022, 21:31 PM)Fred Wrote:
(Sat-03-12-2022, 16:28 PM)D Foster Wrote: I'll keep my fingers crossed for you Fred, just hope that you will have a good outcome. Mrs Dave says will it improve your music choice.

Thank you Dave.

Tell her nothing could improve my music choices a I already listen to the best.  Tongue
Big Grin
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Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,217
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#280
Sat-03-12-2022, 21:38 PM
(Sat-03-12-2022, 21:32 PM)D Foster Wrote:
(Sat-03-12-2022, 21:31 PM)Fred Wrote:
(Sat-03-12-2022, 16:28 PM)D Foster Wrote: I'll keep my fingers crossed for you Fred, just hope that you will have a good outcome. Mrs Dave says will it improve your music choice.

Thank you Dave.

Tell her nothing could improve my music choices a I already listen to the best.  Tongue
Big Grin

To be honest I would rather sip gin with you and listen to some Jazz than listen to Mrs Dave's choices.
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