Bimzelx for psoriatic arthritis Fred's journey

[Fred]

Been waiting to update after the fourth loading dose taken last Saturday the 18th.

I felt things going a bit downhill before the shots, I had noticed some pain coming back and also got a bit of folliculitis (one of the side effects) but I'm pleased to say the folliculitis is getting better as is the psoriatic pain.

Not much else to report apart from waking up with nausea some nights, it doesn't seem to be related to Bimzelx but I will keep a note here for future reference.

Psoriasis score: Can go down from 2 to 1.

Psoriatic arthritis score: I would have put it up from 1 to 2 on Saturday, but I think I can leave it at 1 for now as it seems to be going down again.

One more loading dose in 4 weeks before going to 2 shots every 8 weeks, but I'm starting to think I may need it every 4 weeks.

Dermatology appointment mid May.

[Caroline]

That keeps on looking good Fred.
And indeed, the 4 weeks seem to be necessary for you if I read your words well. But if that is possible than that is ok.
Hope that this biologic will be able to stay with you for a very long long time.

[Turnedlight]

It’s all looking good, do you think they would adjust the dose interval if you request it?

[Fred]

That keeps on looking good Fred.
And indeed, the 4 weeks seem to be necessary for you if I read your words well. But if that is possible than that is ok.
Hope that this biologic will be able to stay with you for a very long long time.

It’s all looking good, do you think they would adjust the dose interval if you request it?

Thank you both.

They can go to every 4 weeks instead of 8 weeks for patients over 100k I'm 97k, but they have given me double doses before of other bio's so I will see at my next appointment in May.

[mataribot]

Just drink a few glasses of water just before your next appointment and you'll be over 100k

[Forest Walker]

I'm really glad this is working for you.  Do you have a pretty good relationship with the prescribing doctor?

[Fred]

Just drink a few glasses of water just before your next appointment and you'll be over 100k

I would rather drink Merlot it has more calories than water and I wouldn't need so many glasses. 

I'm really glad this is working for you.  Do you have a pretty good relationship with the prescribing doctor?

Yes I have a very good relationship with my dermatologist, we have been together well over ten years. I once told her to chill out and choose the patients she got on with when she got promoted, luckily I was one of those patients and today she is the top dermatologist at the university hospital that I use.

She also knows about Psoriasis Club and has even told her students in the past to give us a look ............................ Oh I better be careful as she may be reading this.

Yes we get on very well.

[Caroline]

Oh, that is fun about the psoriasisclub thing,
So we all might be a little famous. !!

[Fred]

Oh, that is fun about the psoriasisclub thing,
So we all might be a little famous. !! 

I used to have permission to put posters in the waiting room about Psoriasis Club, but when they moved to the newer part of the hospital they stopped allowing posters or leaflets.

But yes they could be talking about Caroline right this minute for all we know. I don't know if any of the students have ever registered here, but they wouldn't need to to read the psoriasis boards.

[jiml]

So pleased that Bimzelx is still working for you Fred and from what you are posting it seems as if you will need 4 weekly doses to keep everything at bay  . I'm pleased it's possible to increase the dose rather than have to move on again. Does it have to be either 8 or 4 weeks can they do in-between  like 5 or 6 weekly ?

But whatever the dose long may it keep working for you