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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Bimzelx for psoriatic arthritis Fred's journey

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Bimzelx for psoriatic arthritis Fred's journey
mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,340
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#71
Sun-16-04-2023, 02:42 AM
Fred, can you delete duplicate posts? Sorry.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#72
Sun-16-04-2023, 11:11 AM
(Sat-15-04-2023, 20:52 PM)Caroline Wrote: Hope the arthritis score is indeed because of the damp weather. As far as I can see the better weather is approaching.

Thank you Caroline, yes the better weather is on the way. Smile

(Sun-16-04-2023, 02:42 AM)mataribot Wrote: Fred, can you delete duplicate posts? Sorry.

No problem Mata, job done. Thumb And you can keep your snow.
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Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#73
Sun-16-04-2023, 18:49 PM
Glad to hear you are still happy with your treatment. Thumb
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#74
Mon-17-04-2023, 09:00 AM
Good to see it's working ok and hope the rising arthritis score is a temporary blip and as the better weather gets here the score will come down
Hopefully the maintenance dose every 8 weeks will be enough and you don't have to go to four weekly so soon
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#75
Mon-17-04-2023, 12:19 PM
(Sun-16-04-2023, 18:49 PM)Kat Wrote: Glad to hear you are still happy with your treatment.  Thumb

(Mon-17-04-2023, 09:00 AM)jiml Wrote: Good to see it's working ok and hope the rising arthritis score is a temporary blip and as the better weather gets here the score will come down
Hopefully the maintenance dose every 8 weeks will be enough and you don't have to go to four weekly so soon

Thank you both, yes it would be nice to keep on the 8 weeks between shots for as long as possible as it will leave me something to fall back on.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#76
Tue-18-04-2023, 01:51 AM
(Mon-17-04-2023, 12:19 PM)Fred Wrote:
(Sun-16-04-2023, 18:49 PM)Kat Wrote: Glad to hear you are still happy with your treatment.  Thumb

(Mon-17-04-2023, 09:00 AM)jiml Wrote: Good to see it's working ok and hope the rising arthritis score is a temporary blip and as the better weather gets here the score will come down
Hopefully the maintenance dose every 8 weeks will be enough and you don't have to go to four weekly so soon

Thank you both, yes it would be nice to keep on the 8 weeks between shots for as long as possible as it will leave me something to fall back on.
Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#77
Mon-15-05-2023, 11:27 AM
Had my dermatology appointment today and she was pleased. She didn't bother with the pasi score as I only have a little bit of psoriasis on one of my left knuckles and another little bit on my right shin.

She also said she could see a big change in me regarding the psoriatic arthritis. I do still get a little pain when asleep or when it's damp, but it's not enough to cause me any real problems. My left wrist still has a bit of inflammation but when I had my ankle done they said they didn't think it was psoriatic arthritis, so we are waiting to see if Bimzelx will help.

She confirmed there was a little folliculitis but didn't think it needed any treatment.

I mentioned the nausea I noticed after the last shots but as it wasn't too bad we decided to see what happens after my next shots in 4 weeks time.

When I told her how quick it started working she said a lot of other patients using it had said the same.

I'm staying on the two shots every 8 weeks for now and she asked me if I would be happy to have my next appointment in a year. She said I could call her if I have any problems but she didn't think I would need to see her in 6 months as usual. I agreed as it will allow her to see another patient and she knows I know the score by now.

Psoriasis score: 1

Psoriatic arthritis score: 1

All in all I'm happy.
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Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#78
Tue-16-05-2023, 15:46 PM
That's great news Fred! Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#79
Tue-16-05-2023, 19:46 PM
(Tue-16-05-2023, 15:46 PM)Kat Wrote: That's great news Fred!  Thumb


Thank you Kat. Smile
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Raxyl Offline
100 + Member living the dream

100 + Member I Just Cant Stop !
Posts: 7,405
Threads: 35
Joined: Nov 2017
Gender: Male
Location: Launceston, Tasmania
Psoriasis Score: 2
Treatment: Cosentyx
#80
Tue-16-05-2023, 23:19 PM
Great to hear Fred, long may it continue.
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