A reintroduction

[pingu]

It is a very long time since I have been here, I kind of lost track of it and searched a few times but didn't manage to find the site but today I have.

So whats new! I was on methotrexate and eventually got taken off it. I was given skilerance that didn't work but my consultant has no record of it so has prescribed it again. I need to get the pharmacy to write to him telling him that I have already tried it! I had acretin that nearly killed me. You know when you have a blood test and within hours your GP and consultant ring you and tell you to stop taking the drug immediately and to go to hospital the next day for tests, I think it was my neutrophils cells had plummeted so I had basically no immune system, something like that anyway. Then I went on cyclosporine which I have just been taken off.

Life is OK learned to cope with psoriasis a long time ago and it has generally been a lot more manageable apart form about 12 months after I was taken off methotrexate. I know I know its a bad drug but worked for me until my liver needed to recover a little.

If I don't end up on the skilerance I will be on biologicals.

Anyway I am glad I found you.

[Caroline]

Hi Pingu,

Nice to see you back again.
A number of us are still here, others have left for diverse reasons, but we also have some lovely new members.

Good that you cope with your psoriasis.

Hope that Skilarence will work for you. Remember it is a slow burner. If nothing happens in two weeks, that is normal. It takes at least 6 weeks to do something and be loaded up to a working level of pills. If it works then in the long run it can get gradually more effective.
Your lymphocytes should go down a little bit, not too much so be alert, and you should have the redness moments about once a day. If not, then it probably will not work.

Anyway good luck and indeed after that, there are always the biologics.

[Fred]

Hello Pingu I vaguely remember you 419 posts to your name so yes I have to ask where have you been ?

Unfortunately Psoriasis Club isn't liked by the Googlies of today's world as they want us to pay to get in the search results, that will never happen whilst I'm in charge.

You need to bookmark our forum so you know we are here, search engines don't like us as we are not interested money.

I understand people come and go and it has always been something I embraced but it's our members that make Psoriasis Club what it is. Anyway as Caroline said "Nice to see you back again"

Maybe don't be a stranger so much it only takes a couple of minutes a month to log-in and see what is going on.

Here is a thread that only members can see [Group Specific] get involved if you wish but remember Psoriasis Club has no money and will never pay or ask for others to pay yes we are difficult to find, but years have taught me that the good find us again. 

[pingu]

Caroline what are the "red moments"?

Fred thank you. It has been a while, I always enjoyed sticking my nose in here, I think lif egot in the way, I had some mental issues and spent a lot of time off work after covid as I did a lot of work during covid. Not sure when I was last here.

That said I did always find it a good place to come and chill.

[Fred]

Caroline what are the "red moments"?

Fred thank you. It has been a while, I always enjoyed sticking my nose in here, I think lif egot in the way, I had some mental issues and spent a lot of time off work after covid as I did a lot of work during covid. Not sure when I was last here.

That said I did always find it a good place to come and chill.

Your last post was 31-12-2017

Only spammers and scammers get in the way and they are swiftly shown the door, Psoriasis Club isn't always about psoriasis over the past 14 years I have seen member come and go but it does make me feel good when one comes back.

I'm just a person like all of our members. 

[Kat]

Welcome back Pingu!

Hopefully you're next treatment will work out well for you. And yes, I totally get how life can sometimes get in the way and changes our direction. But really glad you found your way back here.

[Raxyl]

Welcome back Pingu

[Caroline]

Caroline what are the "red moments"?

That is a side effect of DMF, called “flushes”  or kind of a heatwave.
What happens is that the little veins in your body, so also in the skin, open up and let more blood coming trough. Which means that you become all red, like you are blushing all over your body. It is a harmless side effect and normally lasts for 20 minutes.
It mostly happens in the beginning of the treatment and gets less later on. I have seen research that shows that it is often a signal that the medication is doing its job.
With me it always started with my head, which became all red and then it spread towards the rest of my body. Some people experience it as very inconvenient, but I did not care at all.

[Turnedlight]

Hi nice to see you back!
It sounds like you done enough of their different drugs now to try bios if you want to.

[Forest Walker]

Hi, Pingu.  Nice to meet you.