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Psoriasis Club › HealthHealth Boards › Introductions v
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introduce myself

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introduce myself
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#11
Wed-04-02-2015, 13:56 PM
(Wed-04-02-2015, 13:41 PM)Deena Wrote: (do you cal it also flushing, when your head gets realy red, and hot?)

I think it is where you are sitting to near to your fire or radiator D
[Image: g41004.gif]

I better hide now [Image: t3613.gif]

GB [Image: m0202.gif]
Deena Offline Author
Novice


Posts: 9
Threads: 1
Joined: Feb 2015
Gender: Female
Location: Netherlands
Treatment: psorinovo. reishi capsules
#12
Wed-04-02-2015, 14:02 PM
haha thanks GB . or it is my age? that is what my husband thinks. on the other (or bride) side, its freezing here in Holland and I have a sunny color in my face haha ( it only looks like I had to much sun) Tongue
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,496
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#13
Wed-04-02-2015, 14:27 PM
(Wed-04-02-2015, 13:41 PM)Deena Wrote: thanks Caroline Jiml and Grizly Bear.

I have adjusted it Caroline, I'm female :-)
I find the dutch psorinovo forum/site verry useful I agrea, and I don't mind to pay for it, but it would be more usefull if the forum is more up to date, and it is more fun on a forum when there are more members on line.
I'm please to meet a fellow psorinovo user. I am curious if you also suffer side effects from it. for me it went wel for weeks. I also take reishi/ganoderma capsules and I didn't had side effects , 3 weeks ago I stopt taking the reishi capsules and the past 2 weeks I sufferd from flushings and hives. yesterday I started taking the reishi capsules again and the flushings finely stopt (do you cal it also flushing, when your head gets realy red, and hot?) I only suffer a little bit from the hives, but now I won't stop taking the reishi anymore. how much psorinovo do you take? Caroline? I have still the highest dose, I take 720mg a day. I hope to decrease the dose in march.

hope to hear from you about your experience.

gr D

Will answer you later on.
Now at work.
Wave
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,496
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#14
Wed-04-02-2015, 21:03 PM
Hi Deena,

As this is introduction thread of you, do you mind if we continue in another thread that is concerning Dimethylfumarates?
So that the experiences with Psorinove are gathered in a relevant thread.
Will you follow me to RE: [split] Dimethylfumarates and Psoriasis  Smile Just click the link.

See you there  Wave
Caroline.
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,149
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#15
Wed-04-02-2015, 21:53 PM
Welcome Deena ,they are all bonkers on here but there is lots of info and everybody is in the same boat so we all know what problems P and PsA causes .
Take care Dave
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,914
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#16
Wed-04-02-2015, 23:07 PM
(Tue-03-02-2015, 17:56 PM)Caroline Wrote: The other site you are talking about, I know that one.
Only I disagree with your conclusion on it.
If you would become a member over there, you will see that there is a pile of information on it, also in the forum over there, everything what is necessary has been said.
True, it is not really active, as it is only a members forum. And it has a members section.
The site is in fact close to this one in the sense of e.g. advertisements, there aren't any.
They have only one goal... To get Psorinovo registered to keep it available for the patients and members and in fact everyone with psoriasis.

But this forum is way more fun !!!!

Have a good time over here.
Caroline

More fun and Free  Five

Sorry I just couldn't resist it, and I'm with Deena why should people have to pay or get advertising and requests for donations just to use a forum about psoriasis.  NoNo

That was a biased post by Fred.

pcpl  And It's FREE 

We need to change that smiley.   
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,496
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#17
Thu-05-02-2015, 06:31 AM
(Wed-04-02-2015, 23:07 PM)Fred Wrote:
(Tue-03-02-2015, 17:56 PM)Caroline Wrote: The other site you are talking about, I know that one.
Only I disagree with your conclusion on it.
If you would become a member over there, you will see that there is a pile of information on it, also in the forum over there, everything what is necessary has been said.
True, it is not really active, as it is only a members forum. And it has a members section.
The site is in fact close to this one in the sense of e.g. advertisements, there aren't any.
They have only one goal... To get Psorinovo registered to keep it available for the patients and members and in fact everyone with psoriasis.

But this forum is way more fun !!!! O

Have a good time over here.
Caroline

More fun and Free  Five

Sorry I just couldn't resist it, and I'm with Deena why should people have to pay or get advertising and requests for donations just to use a forum about psoriasis.  NoNo

That was a biased post by Fred.

pcpl  And It's FREE 

We need to change that smiley.   

Yes indeed biased  Spank
You don't get the point Fred. whack
1) there are no ads at that forum/site only information.
2) the patients organization fights for the right to be on the market, as it is one of the best instances of DMF around. And the dangers of big Pharma are high.
3) maybe they don't have the capacity to have an open forum, it is not the goal but an additional thing, while here psoriasisclub has the forum as THE overall main part.
4) I spoke to some people who post there, they are just as friendly as over here.

And again a  Spank for you not "thinking"
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,914
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#18
Thu-05-02-2015, 10:25 AM
(Thu-05-02-2015, 06:31 AM)Caroline Wrote: Yes indeed biased  Spank
You don't get the point Fred. whack
1) there are no ads at that forum/site only information.
2) the patients organization fights for the right to be on the market, as it is one of the best instances of DMF around. And the dangers of big Pharma are high.
3) maybe they don't have the capacity to have an open forum, it is not the goal but an additional thing, while here psoriasisclub has the forum as THE overall main part.
4) I spoke to some people who post there, they are just as friendly as over here.

And again a  Spank for you not "thinking"

I do get the point, and I know there are no ads, and yes they may be friendly, but I still don't get why people should have to pay for being a member of a forum  Tongue

Anyway we are  off topic Sorry Deena.

*As you can see Me and Caroline often agree.  Big Grin
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,914
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#19
Sat-07-02-2015, 20:47 PM
If you are looking for new post here I have moved them to a new thread which you can find here: Hello from karaokeking
Troll Offline
I can see you in the dark.

100 + Member I Just Cant Stop !
Posts: 527
Threads: 12
Joined: Sep 2011
Gender: Female
Location: On the fence
Psoriasis Score: 32
Treatment: Sandpaper
#20
Mon-16-02-2015, 09:57 AM
Belated hello Deena Wave
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