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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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Longest time on a successful treatment for psoriasis

Please read the thread below before voting.
Poll: What's been your longest time on a successful psoriasis treatment
One Year
Two Years
Three Years
Four Years
Five Years
Six Years
Seven Years
Eight Years
Nine Years
Ten Years Plus
I've never found one that made a year
[Show Results]
 
 
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Longest time on a successful treatment for psoriasis
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,287
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#11
Sat-07-02-2015, 12:15 PM
(Sat-07-02-2015, 04:31 AM)mataribot Wrote: All honestly,  I am glad I took Stelara. It's a great drug. It's the only drug that that brought me to clinical remission for psoriasis. All great things come to end. Over the last 6 months my arthritis has been getting worse and I started getting some psoriasis patches.  I know  it didn't fail me as bad Fred, but decided to move on.

I hate psoriasis, but  I think I hate PsA worse.

Yes me as well but I have a few P patches in and around my ears that I cannot get rid of but I agree with all you have said. I still get good results with Stelara so I am hoping that I can stay with it for some time yet ,by the way I self inject my 2 x45mg of Stelara, how many self inject ?
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mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,340
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#12
Sat-07-02-2015, 13:33 PM
I was on 90 mg every 3 months. I am fat...
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#13
Sat-07-02-2015, 13:39 PM
@Quest I can't go on Humira I had a reaction to it, and I have now tried all the Bio's that are available on my health care system.

@Matrari I agree, I would rather be completely covered in flakes than go through psoriatic arthritis.
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Paul9 Offline
.

100 + Member I Just Cant Stop !
Posts: 469
Threads: 8
Joined: Mar 2014
Gender: Male
Location: Warwickshire, UK
Psoriasis Score: 30
Psoriatic Arthritis Score: 34
Treatment: Stelera
#14
Sun-08-02-2015, 00:35 AM
(Fri-06-02-2015, 03:02 AM)glenda grant Wrote:
(Fri-06-02-2015, 01:13 AM)jiml Wrote: It's a difficult one to call my current one is the longest I've had the disease under control to the extent that im happy shedding clothes in summer
Although UV treatment always cleared me but I was clear then it came back as soon as treatment stopped I was on and off that for more years than I can remember ... But compared with current treatment where I stay clear there is no comparison .... So three years clear be four around August on Fumaderm
[/I was on Remicade for over a year and the last 3 treatments I broke out in hives.The first two times I thought it was a reaction to some food I had eaten,Then the last time we figured out it was the Remicade.I had to go to the ER and was given a IV of Steroids,benadryl,pepcid.I was having a hard time breathing and it was pretty scary.My Rheumatologist said it was the Remicade all along.So I was off all biologics for almost 6 months.Three months the Dr wanted me to get it all out of my system.Then it took 3 months to get approved for Enbrel.I have been on Enbrel for 4months now.I am seeing help with the Psoriatic arthritis but the psoriasis not as of yet.So I'll give it some more time and maybe it will eventually help.I use steroid creams and use Cereve moisturizer a couple times a day.And I bathe in Dead Sea Salt 3 times a week.I go to the tanning bed but haven't been in the past couple weeks due to bad weather.I am going to get back on schedule and see if it helps.As I said I feel good with the arthritis part.I won't give up on the skin part.Good comes to those who wait!!!! Clap
I seem to be on the same course as you Glenda. I have been on Enbrel for about 14 weeks. I had a bad experience on Methotrexate, then an allergic reaction to Sulfasalazine, needing hospitalisation and continuing high doses of steroids.The Mtx helped my psoriasis greatly (60%), but unfortunately the Enbrel has only improved it a bit (25%).

In general terms the Enbrel is working on the smaller joints like fingers and toes, but not on larger joints like elbows, knees, shoulders and back. I have had a flare for the past month, and have not felt that the PsA has been under control since it was diagnosed a year ago, or since I first got symptoms about 6 years ago.
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phil Offline
Member


Posts: 40
Threads: 2
Joined: Oct 2014
Gender: Male
Location: west sussex
Treatment: fumaderm
#15
Tue-10-03-2015, 19:32 PM
I was on Fumaderm for 9 years 100% clear when I came off them
it was about 2 1/2 years before it started to come back.
glad to say that I am now back on them .
Phil
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jiml Offline
100 + Member I Just Cant Stop !

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Posts: 47,972
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Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#16
Tue-10-03-2015, 19:44 PM
Great news I hope they are working now?

I have been on Fumaderm for three and a half years now with great,succeds apart from a recent flare when I dropped my dose to low ... But now getting back towards clear again
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glenda grant Offline
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Gender: Female
Location: New Salem, Pennsylvania
Treatment: biologics
#17
Tue-10-03-2015, 22:56 PM
(Fri-06-02-2015, 20:20 PM)D Foster Wrote:
(Fri-06-02-2015, 08:06 AM)Caroline Wrote:
(Fri-06-02-2015, 03:20 AM)glenda grant Wrote:
(Fri-06-02-2015, 03:09 AM)jiml Wrote: Yes Glenda we are waiting for your skin to clear on enbrell  Thumb

We just have to take the good with the bad.Hopefully the good will overcome the bad.I am so thankful for all of my Psoriasis friends here.Don't know what I'd do without you all. Kiss

Now that is very nice to hear Glenda  !!   Bigarm
It all depends on how you define successful ,I had 9 years on MTX but it never got the p any better than 70-80% clear though it did work well on the PsA however 2.25 years on Stelara has been the most successful on the P with 99% clearance but not good on the PsA .
Dave seems like we just can't win one treatment helps one thing then we suffer with the other.The Enbrel helps my PSA but it's taking time for the psoriasis to clear.I went to my Dermatologist and she said I am taking 50 mg of Enbrel and should have been on a double dose 100 mg. but my insurance will cover the 50 mg. Would you believe it costs $3,000 a month, my insurance pays $2,400 and the drug company helps me with the $600. I am thankful for that and I use all kinds of creams, shampoo's for my scalp psoriasis. So I will keep my fingers crossed that in time my Enbrel will help my scalp and skin issues. Thumb
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Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#18
Thu-04-02-2016, 23:41 PM
I've just voted.

Since I got this horribl leprosy thing in 1990, the longest I've ever been clear was a few weeks after having imixiflab back in october.

So, I voted on the last one at the bottom. Sad
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#19
Fri-05-02-2016, 12:30 PM
(Thu-04-02-2016, 23:41 PM)Grizzly Bear Wrote: I've just voted.

Since I got this horribl leprosy thing in 1990,  the longest I've ever been clear was a few weeks after having imixiflab back in october.

So, I voted on the last one at the bottom.  Sad

It's making interesting reading. From 31 votes 20 have not got past one year, that is not good and more needs to be done.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 26,595
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Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#20
Fri-05-02-2016, 14:45 PM
(Fri-05-02-2016, 12:30 PM)Fred Wrote:
(Thu-04-02-2016, 23:41 PM)Grizzly Bear Wrote: I've just voted.

Since I got this horribl leprosy thing in 1990,  the longest I've ever been clear was a few weeks after having imixiflab back in october.

So, I voted on the last one at the bottom.  Sad

It's making interesting reading. From 31 votes 20 have not got past one year, that is not good and more needs to be done.

it also would be interesting to see the matching of the treatments with it. Smile
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