Hi!

[Turnedlight]

Hi there, I'm pleased to find this forum as I've been missing chatting with others about P. I haven't really had P until fairly recently in my late 30s, I did have an outbreak when I was 19 when I went off to uni but we thought it was eczema and treated it as such. Since then I've only had small patches occasionally but in 2012 I had an op on my leg under general anaesthetic and also embarked on a very stressful house extension and my P suddenly got worse.

Derm sent me for uvb but had to stop after four sessions on lowest dose as I had bad sunburn from it, which then turned erythrodermic, was a horrible flu like experience and took ages to get help, first dermatologist I saw dismissed me with steroid cream and didn't want to even see the offending skin. My own derm finally saw me, put me straight on prednisolone for about three months. Came off that onto mtx which was great for a while, I was almost entirely clear and tried to wean off it but P cam back rapidly so stayed on mtx, which no longer works so well. Can't cope with the higher 25mg dose so now coming off and going onto Humira.

I'm looking forward to coming off mtx and hoping my energy might return, the side effects seem to get worse with each dose, but scared of Humira!

Looking forward to chatting with you all

[jiml]

Hi there, I'm pleased to find this forum as I've been missing chatting with others about P. I haven't really had P until fairly recently in my late 30s, I did have an outbreak when I was 19 when I went off to uni but we thought it was eczema and treated it as such. Since then I've only had small patches occasionally but in 2012 I had an op on my leg under general anaesthetic and also embarked on a very stressful house extension and my P suddenly got worse.

Derm sent me for uvb but had to stop after four sessions on lowest dose as I had bad sunburn from it, which then turned erythrodermic, was a horrible flu like experience and took ages to get help, first dermatologist I saw dismissed me with steroid cream and didn't want to even see the offending skin. My own derm finally saw me, put me straight on prednisolone for about three months. Came off that onto mtx which was great for a while, I was almost entirely clear and tried to wean off it but P cam back rapidly so stayed on mtx, which no longer works so well. Can't cope with the higher 25mg dose so now coming off and going onto Humira.

I'm looking forward to coming off mtx and hoping my energy might return, the side effects seem to get worse with each dose, but scared of Humira!

Looking forward to chatting with you all  

Hi Turnedlight I'm glad you have found us so   to this friendly forum which has a great group of fellow sufferers all looking for the elusive cure... However I think we all know it's not going to happen so we share our experiences of coping with it and trying to keep it in remission.
You sound as if you have had a bit of a nightmare with psoriasis, but let's hope you will get relief with Humira. It's a great bio drug and several on here use it successfully.
However if it makes you nervous and you decide it's not for you there are still many alternatives like the drug I use Fumaderrm which is available on the NHS,
I can't really comment on the bio drugs having never had to go there I was lucky just over three years ago I was put on Fumaderm and it has transformed my life.
But you must do what you feel is best for you and hopefully Humira will be the one . I shall cross my fingers for you, do return and keep updating your post , as a record for yourself and a guide for others
I wish you much luck and feel free to join in the banter in off topic where we have a lot of threads for all members to join in with like the popular chatting thread
Hope to chat some more soon
Jim

[Fred]

Hello Turnedlight   to Psoriasis Club.

Good thing you're coming off Methotrexate it's an awful drug, you will find Humira much better and easier to tolerate. I'm a big fan of the Bio treatments as they gave me back my life, like Jim said lot's have had good results with Humira.

What exactly are you scared about concerning Humira?

Regards.

Fred.

[Grizzly Bear]

Welcome turnedlight

[bav101]

Welcome Turnedlight, I'm new here as well but I'll tell you this you wont find a nicer bunch of folks.

[Caroline]

Welcome Turnedlight, I'm new here as well but I'll tell you this you wont find a nicer bunch of folks.  

Thanks bav , the bunch really appreciates such very nice compliments.  

Hello Turnedlight,

I wish you welcome to Psoriasis Forum.
Lots of things to read, but also certainly chat about psoriasis. Together we can fight it at least with all our personal emotions and by sharing we are knowing we are not alone.

But in the mean time there is quite a lot of know how as the members have quite some spreaded  and extensive experience on the various medications.

As Fred says, it's no worry to get off MTX, you should not be afraid of that. In the mean time a scala of other medications is available that is less worse than MTX.

Have also a visit in the off topic, where you really can relax, with a drink and some cake when there is a birthday or else

Caroline

[Quest4Cure]

We all have a lot to share. Sorry to hear you were burned with UVB. That is unfortunate , most assistants are not trained well. Some don't wear protective glasses or give patients protective goggles to protect eyes from the light.

I prefer sunlight and vit-D. D-3 can help many health disorders. Always wear UV sunglasses to protect eyes. Start out slowly then work time up as your skin cannot burn. Sun exposure during the early part of the day or late afternoon.

There are many new drugs on the market today. The protocol is to start with conventional treatments then move on to MTX and bios.

I use occlusion and sunshine for skin P. And Apremilast for PsA.

Everyone responds differently to drugs for P. I hope you find what works for you soon.

Healing blessings sent your way.

[Fred]

Welcome Turnedlight, I'm new here as well but I'll tell you this you wont find a nicer bunch of folks.  

Thanks bav , the bunch really appreciates such very nice compliments.  

Yes we appreciate your kind words, I've added your comment to Members quotes and you may see it on the bottom of the home page or portal.  

[Turnedlight]

Hello Turnedlight   to Psoriasis Club.

Good thing you're coming off Methotrexate it's an awful drug, you will find Humira much better and easier to tolerate. I'm a big fan of the Bio treatments as they gave me back my life, like Jim said lot's have had good results with Humira.

What exactly are you scared about concerning Humira?

Regards.

Fred.

I'm worried about being ill all the time, I'm so fed up on mtx feeling washed out, weak and stupid, I don't want to just replace that with catching colds every five minutes.. Plus I'm not great with needles, I have got used to blood tests now enough not to faint but I'm not looking forward to doing the injections but I don't want anyone else doing it either lol.    thank you for the welcome though  

[Turnedlight]

We all have a lot to share.  Sorry to hear you were burned with UVB. That is unfortunate , most assistants are not trained well. Some don't wear protective glasses or give patients protective goggles to protect eyes from the light.

I prefer sunlight and vit-D.  D-3 can help many health disorders. Always wear UV sunglasses to protect eyes. Start out slowly then work time up as your skin cannot burn. Sun exposure during the early part of the day or late afternoon.

There are many new drugs on the market today. The protocol is to start with conventional treatments then move on to MTX and bios.

I use occlusion and sunshine for skin P. And Apremilast for PsA.

Everyone responds differently to drugs for P. I hope you find what works for you soon.

Healing blessings sent your way.

Thanks I have to say to be fair I don't think it's the nurses fault I got burnt, I never got above the very lowest dose (can't remember how many seconds ) and on one occasion they gave me half of the lowest time. I just burn really easily! I agree with you, the sun is best so long as it's not too strong.