introduction tammie

[tammie]

Hello!! I have been "living" with psoriasis since May 26, 1995. I remember it because i had my 16th bday on the 4th..then i had my first baby on the 19th and i remember i had a skirt i was so excited about wearing since i had lost enough baby weight to fit into it...i was also going to look at a apartment with a friend of mine i had known since public school (kindergarten) ...i can remember it like it was this morning...

i got the skirt out and laid it on my bed..went into the bathroom to take a shower and thats when it happened...i noticed there was a long line of "spots" down my shin, i freaked out...went directly to my papa and asked him what it was, he thought it was hayfever and gave me a bunch of benedryl and sent me on my way. A few days later it covered my legs completely, most of my stomach and chest, also my arms were covered, the palms of my hands and face were just red and itchy.
psoriasis had taken over my body.

bless papa's heart he tried so hard to rid me of this horrible skin condition, taking me to any doctor he could find. My friends treated me like i had something contagious and left me to myself, the boyfriend was no help and my parents had no clue...

no one in my family has psoriasis (my father took off when i was born so i have no idea about his family...which is probably where it is from but like i say i have never had contact with them)

I have tried EVERYTHING available to me from creams, tar, UV lights, tanning beds, diet, methotrexate oral and injection and now i am at the max dose for the methotrexate injection but it makes me so unbelievably nauseas that i cannot handle it any longer, now my 10yr old has it on her scalp and face, she is mortified and rightfully so, the biggest problem i am having is she is autistic and feels pain differently then we do and she scratches the spots until she bleeds. i have not sent her to school as kids are extremely cruel and i cannot stand to subject her to that.

i need some help!
i have a dermatologist appointment for her on the 22snd of feb and hope the doc can help her...i refuse to treat mine until i can relieve her of hers.

i hope i have done my introduction properly and look forward to many conversations with the great members of this club!!

thank you for inviting me!

cheers! tammie

[Fred]

Hello Tammie to Psoriasis Club.

Sorry to hear your daughter has psoriasis too. I always try to find a positive when talking to others about psoriasis, and sometimes it is difficult to come up with something. But I'm going to say the one positive thing about your situation is "As you have psoriasis too, you know what it's like to live with and that will be a great help to your daughter"

Another thing I always say is, there is no cure but there are ways of controlling it and learning to cope with it. Have a good read through some past threads and see what is helping others, but remember what works for some may not work for others. I hope your daughters appointment goes well, and please keep us informed. Maybe if your interested, start a new thread in Psoriasis And Psoriatic Arthritis Topics about her treatment as it could be very useful to others.

Don't forget we also have the [Group Specific] section for our members where you can escape from psoriasis for a while. And you will soon find we are a small but friendly group, and if we can help each other we will.

Nice intro by the way.

Regards.

Fred.  

[KyPrincess]

Hi Tammie! Welcome to the forum!

[Troll]

Hello send your 10yr old a from a Troll.

[Caroline]

Well Tammie,
That was quite some introduction !
Your life didn't go over roses and it still is not.

Anyway welcome on the forum. You are invited to discuss, enjoy and post what you want. Ofthen there is someone around that will answer.
I read you tried everything that was available to you, but still this is not yet everything that is available.

Read around and hope to hear from you.

Caroline

[Hanna]

Hey Tammie,

Sorry to hear your stories, I remember the day I got my first big flare

Have u tried a menthol anti dandruff shampoo? We have head and shoulders in the UK it learned my scalp on first wash 10 years ago and my scalp was awful...it's never been as bad since using it x

[Lady Bugley-Ah]

Hi Tammie
Sorry to hear you've had such a rough time lately but you sound like a strong person so stick to your guns and try to keep a positive mind (I know sometimes easier to say than do when we're feeling low). Hopefully the doctor can find something suitable to help your daughter and you can find some answers and ideas here in the forum.
All the very best
Lady B x

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*This thread is closed. All introductions are closed after 90 days to save confusion.
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