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Introduction Joanne gee

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Introduction Joanne gee
Joanne gee Offline
Newbie


Posts: 4
Threads: 1
Joined: Oct 2015
Gender: Female
Location: New york
Treatment: Stelara
#1
Mon-05-10-2015, 00:00 AM
Hi all, 
I am Joanne. New to this site and posting , as well. Lived with psoriasis for 40 years now. Completely clear due to Stelara, but now facing major dental issues. Saw a few threads on subject. Is anyone else suffering from this ?  Thank you.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Mon-05-10-2015, 00:16 AM
(Mon-05-10-2015, 00:00 AM)Joanne gee Wrote: Hi all, 
I am Joanne. New to this site and posting , as well. Lived with psoriasis for 40 years now. Completely clear due to Stelara, but now facing major dental issues. Saw a few threads on subject. Is anyone else suffering from this ?  Thank you.

Hi Joanne and  Welcome  to the forum. I'm afraid I don't have an answer to your question, and over here in England  it's just gone midnight and many members have left the site for today, I'm sure if you will get an answer anywhere it will be from someone here,

The site is packed with information on all treatments ... There is no hype here we are all happy to share what knowledge we have from personal experience. There are many members on Stelara so you will get replies .

In the meantime feel free to browse the health boards , and if you want to escape psoriasis join us in the off topic section where there are lots of threads that are more light hearted where members let their hair down .
Again welcome and good luck  Thumb
Quest4Cure Offline
As long as there is breath there is life. Life is a gift!

100 + Member I Just Cant Stop !
Posts: 639
Threads: 19
Joined: Aug 2014
Gender: Male
Location: US
Psoriasis Score: 13
Treatment: light treatments and a variety of many others.
#3
Mon-05-10-2015, 00:41 AM
Welcome Joanne gee,

Good to hear Stelara has helped clear your P. I too have had P over 40 years. Now dealing with PSA. Some issues with my jaw joint due to PSA. Causes the joint to lock up occasionally.
I take apremalast for PSA.. But not experienced tooth loss other than a few cracks in fillings that cause abscess. I go in every 6 months for cleaning & check ups. Some drugs I have taken in the past has depleted the calcium in my teeth so I am extra diligent with keeping my teeth clean.
You aren't the only one that has asked about teeth loss on bio drugs. I hear it a lot. I have done research on the Internet & could not find it as a side effect. Some of these bio drugs are new in the market and may not have enough time to evaluate all the side effects. My rhumey also said that bio drugs have no connection that he knows of.
I always wonder if it could be some type of bacteria from the gut while on bio drugs that can cause tooth decay or even bone loss. If anyone knows you'll most likely find it here.
Hope you will get thru this issue soon. It's very unpleasant dealing with any dentist as far as I'm concerned.
Take care,
Quest4Cure
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
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Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#4
Mon-05-10-2015, 02:21 AM
Welcome Joanne!

I haven't noticed any connection between psoriasis or treatment and tooth problems personally. I have had problems in the past with sinus infections that have led to having to seek out a dentist and I'm a firm believer that when "x" is injured or affected by disease that other problems throughout the body can occur. It's all connected so I do think one thing can possibly affect another. I also believe that everyone is different in that what can affect one (or help one) may not be the same for the next person. Sorry, not much help really in answering your question.
Quest4Cure Offline
As long as there is breath there is life. Life is a gift!

100 + Member I Just Cant Stop !
Posts: 639
Threads: 19
Joined: Aug 2014
Gender: Male
Location: US
Psoriasis Score: 13
Treatment: light treatments and a variety of many others.
#5
Mon-05-10-2015, 03:39 AM
(Mon-05-10-2015, 02:21 AM)Kat Wrote: Welcome Joanne!

I haven't noticed any connection between psoriasis or treatment and tooth problems personally.  I have had problems in the past with sinus infections that have led to having to seek out a dentist and I'm a firm believer that when "x" is injured or affected by disease that other problems throughout the body can occur.  It's all connected so I do think one thing can possibly affect another.  I also believe that everyone is different in that what can affect one (or help one) may not be the same for the next person.  Sorry, not much help really in answering your question.

That could be true as psoriasis has a connection with the Keobner Effect. One issue stars another. I have experienced that in more ways than I would like. So there could be that effect. Google P Keobner Effect for more info.
Big Grin
Joanne gee Offline Author
Newbie


Posts: 4
Threads: 1
Joined: Oct 2015
Gender: Female
Location: New york
Treatment: Stelara
#6
Mon-05-10-2015, 04:15 AM
Thank you all so very much for the quick response. These biologics are such a double edged sword. So happy to be rid  of p(for now) , but strange things seem to appear out of nowhere. While on Enbrel for 3 years, I was doing great, but developed strange allergic reactions to  things like coffee w cream . Something I have daily caused my throat to close..scary!  Now with Stelara my teeth are a mess. I need 5 implants, bone graphs, sinus lift. Just last week, unrelated to the current dental mess...another bridge came loose and fell out. Hmmmm. Do I go off the drug.. Teeth vs P lol. I need my teeth, but I NEVER want p to come back like it was before biologics. As you all know, it's a nightmare that you learn to live with. Many times I could not put  a comb through my head without bleeding, as anyone with scalp p knows. Anyway, sorry for rambling on. Thank you again, as I will keep you posted.
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,595
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Gender: Female
Location: In between the tulips
Psoriasis Score: 3
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PQOLS: 4
Treatment: Got back to DMF slow release
#7
Mon-05-10-2015, 05:33 AM
Hello Joanne,

Welcome the board. Can't be much of a help for you but only wanted to say hello. Wave

I hope someone will be able to tell you more, they are gradually waking up by now. Smile

Cheers,
Caroline
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#8
Mon-05-10-2015, 08:32 AM
Hi there, nice to meet you! Sorry to hear about the teeth, it is worrying isn't it? I had a big tooth infection when my dentist decided to to a root canal whilst I was on mtx. I told him I was, expecting some antibiotics, but he said I didn't need it.. Big mistake! However, that wasn't dental problems caused by biologics. I'm now on Humira, will watch my teeth carefully..
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,287
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#9
Mon-05-10-2015, 11:47 AM
Hi and welcome to the forum Joanne , I had 9 years on MTX and now have been on Stelara for around 3 years and I have not noticed any correlation with the treatment and tooth problems. sorry to hear that you are having difficulties.
Infections, well yes in fact more with MTX than Stelara but all have been manageable to date anyway.
Have a good look around the site as there is a fantastic amount of information on here and we also have a bit of light hearted fun.

Take care and be aware that most of the inmates don't bite on here. David
Fred Online
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,201
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Treatment: Bimzelx / Coconut Oil
#10
Mon-05-10-2015, 13:01 PM
Hello Joanne Welcome to Psoriasis Club.

I've been on Stelara over 5 year snow and not had any problems with teeth other than the usual stuff we all get, I also don't know of any relation to teeth problems and Stelara.

So I would say stay on the Stelara and get your dental problems sorted, none of us like loosing our teeth but it does happen and I would rather have a few dentures than flaky skin. Smile

Regards.

Fred.
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