Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Introductions v
« Previous 1 … 15 16 17 18 19 … 31 Next »

Joining in.

Pages (2): « Previous 1 2
Thread Closed 
Threaded Mode
Joining in.
Angie Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 137
Threads: 3
Joined: Feb 2015
Gender: Female
Location: Scotland
Treatment: 45mg Stelara
#11
Mon-16-02-2015, 14:29 PM
Mr Andy

I split that thread to give me another post. Something about 5 being what I need.

Love your pics - as always. I will have to learn this computer lark.

Hope your well and keeping busy.

Angie
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#12
Tue-17-02-2015, 20:32 PM
Split thread ? [Image: m1826.gif]

I can remember doing the splits at school when i was ickle. [Image: m0238.gif]

Split the thread in my trousers i can tell you. [Image: m0905.gif]

Made my eyes the size of dinner plates & boy did it make my eyes water !!! lol [Image: t3601.gif]

Hope your skin is not to bad for yourself Angie. [Image: m1218.gif]

Mine is all to pot, think i need a bigger wire brush for my P. [Image: m0152.gif]

Happy scratching

[Image: t2508.gif]





GB [Image: m0241.gif]

[Image: g02163.gif]
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#13
Wed-18-02-2015, 01:41 AM
(Sun-15-02-2015, 22:00 PM)Angie Wrote: I've been reading on here for sometime and thanks to the input of the outcome with Fumaderm , I am quite prepared to crawl about the place if need be for good results and the fact most say the side effects will subside.

The literature I have with the tabs do not give me an indication of when an improvement should be seen. Having asked my derm she says give them 3 months. Now I'm in 9 weeks, although only 2 days on maximum dose , I'm hoping something happens soon, would hate to think I'm going through this for nothing .

Angie

Hi Angie I have checked the info I gave youand here is an except from the NHS  document on the efficacy of fumaderm
Quote:
Summary
♦ Fumaderm® (fumaric acid esters) tablets are licensed in Germany for treating adults with moderate to severe plaque psoriasis for whom topical therapy is ineffective. Although unlicensed in the UK, Fumaderm® is used by specialist dermatology centres.
♦ Limited evidence, including only two randomised controlled trials, indicates that Fumaderm® is beneficial in patients with moderate to severe chronic plaque psoriasis; at least 50% of patients treated with Fumaderm® have a reduction of about 70% or more in Psoriasis Area and Severity Index (PASI) score after 16 weeks of treatment. Patients with recalcitrant disease are less likely to achieve significant improvement, but many can stop, or reduce the dose of, concomitant systemic anti-psoriasis agents. There are insufficient data to recommend Fumaderm® for mild psoriasis.
See my post here for the full details
NHS and Fumaderm
And hope it helps
Caroline Online
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#14
Wed-18-02-2015, 09:55 AM
(Wed-18-02-2015, 01:41 AM)jiml Wrote:
(Sun-15-02-2015, 22:00 PM)Angie Wrote: I've been reading on here for sometime and thanks to the input of the outcome with Fumaderm , I am quite prepared to crawl about the place if need be for good results and the fact most say the side effects will subside.

The literature I have with the tabs do not give me an indication of when an improvement should be seen. Having asked my derm she says give them 3 months. Now I'm in 9 weeks, although only 2 days on maximum dose , I'm hoping something happens soon, would hate to think I'm going through this for nothing .

Angie

Hi Angie I have checked the info I gave youand here is an except from the NHS  document on the efficacy of fumaderm
Quote:
Summary
♦ Fumaderm® (fumaric acid esters) tablets are licensed in Germany for treating adults with moderate to severe plaque psoriasis for whom topical therapy is ineffective. Although unlicensed in the UK, Fumaderm® is used by specialist dermatology centres.
♦ Limited evidence, including only two randomised controlled trials, indicates that Fumaderm® is beneficial in patients with moderate to severe chronic plaque psoriasis; at least 50% of patients treated with Fumaderm® have a reduction of about 70% or more in Psoriasis Area and Severity Index (PASI) score after 16 weeks of treatment. Patients with recalcitrant disease are less likely to achieve significant improvement, but many can stop, or reduce the dose of, concomitant systemic anti-psoriasis agents. There are insufficient data to recommend Fumaderm® for mild psoriasis.
See my post here for the full details
NHS and Fumaderm
And hope it helps

The insufficient data is because they stopped investigating an refuse to look at the history that is available in Germany and the Netherlands.
Over here thousands of patients have been treated who are all very satisfied on the product. Apparently to science this means nothing, to common sense of course this means all...

Cool
Angie Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 137
Threads: 3
Joined: Feb 2015
Gender: Female
Location: Scotland
Treatment: 45mg Stelara
#15
Wed-18-02-2015, 22:23 PM
Thanks Jiml.

Had derm appointment today, and she thinks it's going fine. To carry on now for three months. Bloods done today and in one months time.  I did notice my lymphocytes count was 1.0 , I think the best had been 2.2 and the Eos. was  0.6 (marked as high) . I realise that for improvement one usually goes down and the other up, but they results were when I had moved up to three tablets.   So maybe I should check today's results next week as she just tells me they will be fine.  I have read on here about adjusting the dose if the counts weren't good but I won't see her for three months and not sure how much they check for you .

I did see some info that's says as long as the lymph count doesn't go below 0.5 it's ok. But not sure about the other? Do you have info on that?

Well off to do my nightly cream and scratch regime ! Ha

Thanks very much for your help, much appreciated.

Angie
Angie Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 137
Threads: 3
Joined: Feb 2015
Gender: Female
Location: Scotland
Treatment: 45mg Stelara
#16
Wed-18-02-2015, 22:27 PM
Hi Caroline

Yes it would appear they do not no very much here at all. Any time I have asked my Gp or pharmacist for advise as to anything I could use to help with the side effects, they tell me they don't know much about them. My Gp looked them up on the internet!  Not good .

Thanks for replies.

Angie
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#17
Thu-19-11-2015, 11:47 AM
This is just a test

*This thread is closed. All introductions are closed after 90 days to save confusion.
You are welcome to start new threads in any other sections of your choice.
« Next Oldest | Next Newest »
Pages (2): « Previous 1 2
Thread Closed 


Possibly Related Threads…
Thread Author Replies Views Last Post
  Joining the Club! Hi There tdjclarke 12 13,204 Mon-07-05-2018, 23:05 PM
Last Post: Raxyl



Users browsing this thread: 1 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode