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Psoriasis Club › HealthHealth Boards › Introductions v
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Newbie ConLFC

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Newbie ConLFC
Caroline Online
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#11
Thu-19-11-2015, 21:33 PM
(Thu-19-11-2015, 21:09 PM)ConLFC Wrote: Thanks guys I will definitely keep an open mind regarding the other treatments.  Fumaderm definitely sounds like something I'd be happy to start with but it seems even that I'll be lucky.  I guess I have a chip on my shoulder with the docs for getting my initial diagnosis wrong when the dermo could clearly see what it was.  But I'll let that go and start fresh.   But being me I'll definitely chance my arm for the good stuff but I'll try with a smile instead of a frown. 

Although nobody wants psoriasis it has a silver lining in my story.. Prior to my diagnosis I ate and drank what I want to my own detriment.  I was slightly over weight, lazy, and drank my fair share every weekend.  Now I'm slim, energetic, more outgoing and drink in moderation.    Although the changes in diet and exercise have not cleared me up they have definitely cheered me up.  

I will let you guys know how I get on by way of a new thread with hopeful a new thing to try. 

Thanks so much for the warm welcome 

Conor

Five Another sportive guy ! Great to be fit isn't it? Smile
You can join Jim and me when we go to the gym Big Grin
ConLFC Offline Author
Member


Posts: 36
Threads: 2
Joined: Nov 2015
Gender: Male
Location: Uk
Treatment: Epaderm, Dovobet
#12
Thu-19-11-2015, 21:40 PM
(Thu-19-11-2015, 21:13 PM)Fred Wrote:
(Thu-19-11-2015, 21:09 PM)ConLFC Wrote: I will let you guys know how I get on by way of a new thread with hopeful a new thing to try. 

Yes please don't hesitate to start a new thread about your journey. Your input could help others in the same boat, and it will give you something to look back on.

Yes I definitely will Fred..  There are allot of good people out there and some very smart people too.. I have every confidence that things will be easier over time
ConLFC Offline Author
Member


Posts: 36
Threads: 2
Joined: Nov 2015
Gender: Male
Location: Uk
Treatment: Epaderm, Dovobet
#13
Thu-19-11-2015, 21:44 PM
(Thu-19-11-2015, 21:30 PM)jiml Wrote: Im glad you are keeping an open mind Connor on the possibility of other treatments, and yes it's better to discuss matters with a dermatologist in a friendly manner, I'm sure it will get better results for you.

Good to hear about the plus side of psoriasis getting you fit , for me I don't have the will power and am letting my Fumaderm keep me clear.
How I wish there were places like this years ago when I was in a desperate state with psoriasis feeling very alone with no one to turn to .....the best thing with having psoriasis for me is this site as it gives us a chance to learn more about the disease so when we do see the dermatologist instead of believing him when he tells you to try this new cream, you can say with authority " but I know there are better treatments that will block the cells that are affecting my skin." He is more likely to prescribe something useful if you have a reasoned arguement.... But I still doubt it will be the one you want..

If you are able to get Fumaderm ( I'm not trying to put you off ) but there can be some unpleasant side effects. Which do put a lot of people off but they are short lived ( or they were for me ) and they do diminish after time

And as Fred says do start a thread to relate your journey, it will prove helpful to you, and probably others as well
Cheers mate,  I'll have to look into the side effects.. What are the major ones?  Calm and steady all the way from here on out!  My initial breakout happened after a very bad breakup.  I was in bits for months and didn't eat properly sleep properly and stressed right out.  Allot of people say  stress brings this on. Does anyone else follow this theory?
ConLFC Offline Author
Member


Posts: 36
Threads: 2
Joined: Nov 2015
Gender: Male
Location: Uk
Treatment: Epaderm, Dovobet
#14
Thu-19-11-2015, 21:49 PM
(Thu-19-11-2015, 21:33 PM)Caroline Wrote:
(Thu-19-11-2015, 21:09 PM)ConLFC Wrote: Thanks guys I will definitely keep an open mind regarding the other treatments.  Fumaderm definitely sounds like something I'd be happy to start with but it seems even that I'll be lucky.  I guess I have a chip on my shoulder with the docs for getting my initial diagnosis wrong when the dermo could clearly see what it was.  But I'll let that go and start fresh.   But being me I'll definitely chance my arm for the good stuff but I'll try with a smile instead of a frown. 

Although nobody wants psoriasis it has a silver lining in my story.. Prior to my diagnosis I ate and drank what I want to my own detriment.  I was slightly over weight, lazy, and drank my fair share every weekend.  Now I'm slim, energetic, more outgoing and drink in moderation.    Although the changes in diet and exercise have not cleared me up they have definitely cheered me up.  

I will let you guys know how I get on by way of a new thread with hopeful a new thing to try. 

Thanks so much for the warm welcome 

Conor

Five Another sportive guy ! Great to be fit isn't it? Smile
You can join Jim and me when we go to the gym  Big Grin

It comes at great cost Big Grin  I have had my feet up for three weeks itching to get back into it.  I shot from 1 k to 6 k in 25 days.. Ran my wee feet into disrepair.  It appears I have got plantar fasciitis.  Too far too quickly.  I got some good insoles and it's slowly getting better.  May have to start swimming though to keep my levels up  Big Grin
Caroline Online
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#15
Thu-19-11-2015, 22:07 PM
(Thu-19-11-2015, 21:49 PM)ConLFC Wrote:
(Thu-19-11-2015, 21:33 PM)Caroline Wrote:
(Thu-19-11-2015, 21:09 PM)ConLFC Wrote: Thanks guys I will definitely keep an open mind regarding the other treatments.  Fumaderm definitely sounds like something I'd be happy to start with but it seems even that I'll be lucky.  I guess I have a chip on my shoulder with the docs for getting my initial diagnosis wrong when the dermo could clearly see what it was.  But I'll let that go and start fresh.   But being me I'll definitely chance my arm for the good stuff but I'll try with a smile instead of a frown. 

Although nobody wants psoriasis it has a silver lining in my story.. Prior to my diagnosis I ate and drank what I want to my own detriment.  I was slightly over weight, lazy, and drank my fair share every weekend.  Now I'm slim, energetic, more outgoing and drink in moderation.    Although the changes in diet and exercise have not cleared me up they have definitely cheered me up.  

I will let you guys know how I get on by way of a new thread with hopeful a new thing to try. 

Thanks so much for the warm welcome 

Conor

Five Another sportive guy ! Great to be fit isn't it? Smile
You can join Jim and me when we go to the gym  Big Grin

It comes at great cost Big Grin  I have had my feet up for three weeks itching to get back into it.  I shot from 1 k to 6 k in 25 days.. Ran my wee feet into disrepair.  It appears I have got plantar fasciitis.  Too far too quickly.  I got some good insoles and it's slowly getting better.  May have to start swimming though to keep my levels up  Big Grin

I can imagine that Connor, way too fast if you are not used to it. I was a runner too, long distance, but had to give it all up, it still hurts mentally.
Now I am spinning, that is going very well.

About your earlier post, yes, stress kicked it off with me also.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#16
Thu-19-11-2015, 22:07 PM
(Thu-19-11-2015, 21:44 PM)ConLFC Wrote: Allot of people say  stress brings this on. Does anyone else follow this theory?

Yes it's a well known fact that stress has a huge influence on psoriasis and psoriatic arthritis.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#17
Thu-19-11-2015, 22:11 PM
the side effects of Fumaderm were for me abdominal cramps, for me they came a few hours after taking my tablets and lasted around half an hour, some were bad enough to double me up, the other thing is hot flushes. They start with the top of your head and work their way down your body.... Not unpleasant but can be embarrassing .......after a couple of months for me the side effects stopped apart from the flushing which I still get most days

found a few related threads for you to look at if you wish it's other experiences of Fumaderm

Fumaderm continued success this is mateychuck's intro

Methotrexate or Fumaderm? this is ccar's intro

Newbie Cheryl75 this is Cheryl' intro

My journey on furmederm starts this is Cheryl's journey

They may be of interest to you  Thumb
ConLFC Offline Author
Member


Posts: 36
Threads: 2
Joined: Nov 2015
Gender: Male
Location: Uk
Treatment: Epaderm, Dovobet
#18
Thu-19-11-2015, 22:24 PM
(Thu-19-11-2015, 22:07 PM)Caroline Wrote:
(Thu-19-11-2015, 21:49 PM)ConLFC Wrote:
(Thu-19-11-2015, 21:33 PM)Caroline Wrote:
(Thu-19-11-2015, 21:09 PM)ConLFC Wrote: Thanks guys I will definitely keep an open mind regarding the other treatments.  Fumaderm definitely sounds like something I'd be happy to start with but it seems even that I'll be lucky.  I guess I have a chip on my shoulder with the docs for getting my initial diagnosis wrong when the dermo could clearly see what it was.  But I'll let that go and start fresh.   But being me I'll definitely chance my arm for the good stuff but I'll try with a smile instead of a frown. 

Although nobody wants psoriasis it has a silver lining in my story.. Prior to my diagnosis I ate and drank what I want to my own detriment.  I was slightly over weight, lazy, and drank my fair share every weekend.  Now I'm slim, energetic, more outgoing and drink in moderation.    Although the changes in diet and exercise have not cleared me up they have definitely cheered me up.  

I will let you guys know how I get on by way of a new thread with hopeful a new thing to try. 

Thanks so much for the warm welcome 

Conor

Five Another sportive guy ! Great to be fit isn't it? Smile
You can join Jim and me when we go to the gym  Big Grin

It comes at great cost Big Grin  I have had my feet up for three weeks itching to get back into it.  I shot from 1 k to 6 k in 25 days.. Ran my wee feet into disrepair.  It appears I have got plantar fasciitis.  Too far too quickly.  I got some good insoles and it's slowly getting better.  May have to start swimming though to keep my levels up  Big Grin

I can imagine that Connor, way too fast if you are not used to it. I was a runner too, long distance, but had to give it all up, it still hurts mentally.
Now I am spinning, that is going very well.

About your earlier post, yes, stress kicked it off with me also.

Worst thing is I don't know what I was stressing about.. It was a bad relationship...!  Ahh well hindsight
ConLFC Offline Author
Member


Posts: 36
Threads: 2
Joined: Nov 2015
Gender: Male
Location: Uk
Treatment: Epaderm, Dovobet
#19
Thu-19-11-2015, 22:25 PM
(Thu-19-11-2015, 22:07 PM)Fred Wrote:
(Thu-19-11-2015, 21:44 PM)ConLFC Wrote: Allot of people say  stress brings this on. Does anyone else follow this theory?

Yes it's a well known fact that stress has a huge influence on psoriasis and psoriatic arthritis.

Might have to dabble at some meditation then  Big Grin  Can't do no harm I guess!
ConLFC Offline Author
Member


Posts: 36
Threads: 2
Joined: Nov 2015
Gender: Male
Location: Uk
Treatment: Epaderm, Dovobet
#20
Thu-19-11-2015, 22:29 PM
(Thu-19-11-2015, 22:11 PM)jiml Wrote: the side effects of Fumaderm were for me abdominal cramps, for me they came a few hours after taking my tablets and lasted around half an hour, some were bad enough to double me up, the other thing is hot flushes. They start with the top of your head and work their way down your body.... Not unpleasant but can be embarrassing .......after a couple of months for me the side effects stopped apart from the flushing which I still get most days

found a few related threads for you to look at if you wish it's other experiences of Fumaderm

Fumaderm continued success this is mateychuck's intro

Methotrexate or Fumaderm? this is ccar's intro

Newbie Cheryl75 this is Cheryl' intro

My journey on furmederm starts this is Cheryl's journey

They may be of interest to you  Thumb

When you say embarrassing is that because the flushes are red?  But last for 30 minutes.?  I will read though the threads you have listed with a nice ginger tea!  I get plenty of cramps anyway if I eat too much pizza or thinks of that elk so may well be used to that anyway
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