My journey on furmederm starts

[jiml]

Day 42

Where has all the time gone? It seems like only a few weeks ago that I started this treatment and boy has it flown by.

I have now started 6 tablets today and I am pleased to say that the symptoms I had at the beginning have passed and are a lot less.

Thank you to all that have commented on my journey and I hope that your own journey has good results for you.

Hi Cheryl I was reading your thread again last night and was smiling at the fact that life was getting better for you. And the Fumaderm was doing its magic... Now time has passed and I was wondering if your skin had cleared totally yet...... And are you still on 6 tablets or are you reducing the dose yet?
Hoping things are still good and your tests are normal and you are not having to many side effects
Jim

[Cheryl75]

Happy new year everybody!

I have no idea where last year went, but wanted to update on my journey.

I have now reduced my tablets to 2 daily and have only tiny patches of psoriasis left. When I say tiny, I mean tiny. They are actually not something to even think about. I don't have any side effects from the tablets now. I have my bloods taken and at present there is not any major changes to my bloods so the dermatologist is happy for me to continue, thankfully.

I had my 40th birthday in the summer and was given a photo book as a gift. While looking through the photos my main comment was " look at my skin! No psoriasis! " I am amazed that more people are not able to get this, in my eyes, miracle drug, which has seen me forget that I have psoriasis and enjoy my skin like never before.

Thanks people for all the support and I hope this year brings you all the joy you deserve.  

[jiml]

Happy new year Cheryl and I hope you have many clear years ahead ..
Thank you so much for the update. I'm sure it will help others that are struggling with the early side effects

It's great to know you are enjoying life and able to put psoriasis behind you for hopefully many years. Am still like you and from time to time still marvel at the clear skin

It's great to hear that you aren't experiencing any side effects and have reduced to just 2 tablets a day

Yes it's a shame that Fumaderm isn't prescribed more but hopefully dermatologists will catch on at some stage and start prescribing it more saving the NHS a fortune

Yes like you I think it's a miracle drug, and I thank you for taking the trouble to update your thread with such positive news  

[Fred]

Thank you for taking the time to update Cheryl, good to hear it's working for you.

Happy New Year to you too.

[lilkell]

Great to hear it's working so well for you!

I started on fumaderm last February, and although I had terrible side effects for a month or so, they eventually went...and so did my psoriasis! It was the happiest I had been in years. Until around September when my dermatologist contacted me saying my bloods were off and too reduce my dose. I kept having to reduce my dose until eventually I was off them completely (about a month ago) as my white cell count was still low, not dangerously low mind. So now my psoriasis has come back worse than before I began the treatment, having it in places I never did Now I am Feering my bloods done again in a week and will be seeing my dermatologist in two weeks, so fingers crossed he will have a solution for me

Glad to hear it does work though Cheryl

[lilkell]

Sorry I ment I am "having" my bloods done in a week

[jiml]

Sorry I ment I am "having" my bloods done in a week

What a shame you had to come off Fumaderm, I'm sure your bloods will recover quickly, but your dermatologist is right it's not worth compromising your immune system and if reducing the dose didn't bring the count up again then stopping is right

Such a shame as it was working
But your dermatologist has many more treatments he can get you on, one of which should work without too many side effects
Good luck and keep us informed of your progress
And a happy new year to you  

[Caroline]

Sorry you had to go off Fumaderm. Lilkell
Indeed, as Jim says, if your blood counts are too low it is not worth risking.
As you have stopped Fumaderm, the counts should be back very quickly again, according to the literature on the DMF subject.

Some things to remark though.
What is too low ? It is known that white cell count can be lower than normal, but as long as it is not too low that you would come in danger to get e.g. PML, than you can live with a low cell count.

There are some tricks to increase your cell count while still using Fumaderm, as there is the intermittent use of the medication, where you use a higher dose at a certain point and than nothing in between for a few days.
See the descriptions of Bill, he has been experimenting with it.

[glenda grant]

Happy new year everybody!

I have no idea where last year went, but wanted to update on my journey.

I have now reduced my tablets to 2 daily and have only tiny patches of psoriasis left. When I say tiny, I mean tiny. They are actually not something to even think about. I don't have any side effects from the tablets now. I have my bloods taken and at present there is not any major changes to my bloods so the dermatologist is happy for me to continue, thankfully.

I had my 40th birthday in the summer and was given a photo book as a gift. While looking through the photos my main comment was " look at my skin! No psoriasis! " I am amazed that more people are not able to get this, in my eyes, miracle drug, which has seen me forget that I have psoriasis and enjoy my skin like never before.

Thanks people for all the support and I hope this year brings you all the joy you deserve.  

Cheryl so glad the pills are helping you I am on Enbrel shots and I also only have a few small patches so thankful my skin is clear.Wish everyone would be like us and have clear skin!

[Bill]

Nice result, Cheryl.