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Fred Online
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,203
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Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#11
Wed-06-01-2016, 21:52 PM
Caroline and Jim in this case I do agree. Tongue
Clairec375 Offline Author
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Posts: 13
Threads: 5
Joined: Jan 2016
Gender: Female
Location: Scotland
Treatment: Dermax and Dovobet
#12
Wed-06-01-2016, 21:54 PM
(Wed-06-01-2016, 21:46 PM)jiml Wrote: Claire I'm not pushing the drug I'm on but if you can get it it might help your ms as well as they prescribe tecfidera for MS treatment and Fumaderm the drug I'm on has the same main ingredient DMF
Just a thought  Smile

Thanks jiml, I will speak to my MS nurse and see what he thinks. I was on capaxone for MS but the daily injections were too sore so stopped and have been trying to get replacement but not found one yet so this might help. Thanks
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
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Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#13
Wed-06-01-2016, 21:54 PM
(Wed-06-01-2016, 21:52 PM)Fred Wrote: Caroline and Jim in this case I do agree.  Tongue

Five
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#14
Wed-06-01-2016, 21:55 PM
(Wed-06-01-2016, 21:50 PM)Caroline Wrote:
(Wed-06-01-2016, 21:46 PM)jiml Wrote: Claire I'm not pushing the drug I'm on but if you can get it it might help your ms as well as they prescribe tecfidera for MS treatment and Fumaderm the drug I'm on has the same main ingredient DMF
Just a thought  Smile

If you hadn't said it Jim, I would have.. Hihi.
We may need a long chat with Claire Smile

Five
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#15
Wed-06-01-2016, 21:58 PM
(Wed-06-01-2016, 21:54 PM)Clairec375 Wrote:
(Wed-06-01-2016, 21:46 PM)jiml Wrote: Claire I'm not pushing the drug I'm on but if you can get it it might help your ms as well as they prescribe tecfidera for MS treatment and Fumaderm the drug I'm on has the same main ingredient DMF
Just a thought  Smile

Thanks jiml, I will speak to my MS nurse and see what he thinks. I was on capaxone for MS but the daily injections were too sore so stopped and have been trying to get replacement but not found one yet so this might help. Thanks

The idea is that you get treated for your psoriasis with Fumaderm. The side effect may be that your MS also gets better. But that last depends on the stage you are in. DMF works best against MS when this is still in the beginning stages. In Germany is a guy who has MS and treats himself with DMF.
The Dutch MS group is very satisfied on DMF for MS, even it it is the extremely expensive tecfidera.
Clairec375 Offline Author
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Posts: 13
Threads: 5
Joined: Jan 2016
Gender: Female
Location: Scotland
Treatment: Dermax and Dovobet
#16
Wed-06-01-2016, 22:01 PM
(Wed-06-01-2016, 21:55 PM)jiml Wrote:
(Wed-06-01-2016, 21:50 PM)Caroline Wrote:
(Wed-06-01-2016, 21:46 PM)jiml Wrote: Claire I'm not pushing the drug I'm on but if you can get it it might help your ms as well as they prescribe tecfidera for MS treatment and Fumaderm the drug I'm on has the same main ingredient DMF
Just a thought  Smile

If you hadn't said it Jim, I would have.. Hihi.
We may need a long chat with Claire Smile

Five
I will happily take on board any advice that I can take to the Dr, MS nurse or neurologist, as I said before I've been fighting dr's etc regarding MS and a lot of info I got through an MS forum really helped. You can never have too much of information
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
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Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#17
Wed-06-01-2016, 22:10 PM
We seem to be posting around each other Claire, my previous post shows a partial answer already.
Clairec375 Offline Author
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Posts: 13
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Joined: Jan 2016
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Location: Scotland
Treatment: Dermax and Dovobet
#18
Wed-06-01-2016, 22:10 PM
Thanks Caroline. I have RRMS so still in 1st stages and anything that can help with it would be brilliant especially if 1 thing can help with both. Thanks I will let you know how I get on come Friday
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#19
Wed-06-01-2016, 22:17 PM
(Wed-06-01-2016, 22:10 PM)Clairec375 Wrote: Thanks Caroline. I have RRMS so still in 1st stages and anything that can help with it would be brilliant especially if 1 thing can help with both. Thanks I will let you know how I get on come Friday

Ok that would be great Claire.
I can advise you to read my thread on Dimethylfumarates and Psoriasis.
It is about psoriasis, but the practical reseach, already many years ago has already shown that DMF is a substance that helps for many auto immune diseases, among which MS. Recently in the VS a version of DMF came on the market specifically for MS, it is exactly the same working substance as Fumaderm.
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
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#20
Thu-07-01-2016, 14:57 PM
Welcome Claire! Glad you found your way here. It can be a struggle fighting with doctors but I see you are going to go to your appointment well prepared. Good luck!!!
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