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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Road to Cosentyx, or should I say Co$entyx

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Road to Cosentyx, or should I say Co$entyx
PAmerican Offline
Member


Posts: 37
Threads: 1
Joined: Jul 2016
Gender: Female
Location: Nyc
Psoriatic Arthritis Score: 36
Treatment: Cosentyx since March 27, 2017
#1
Fri-22-07-2016, 02:21 AM
Hello, and I hope today was better than the last. I am waiting to hear about patient assistance, but I'm wondering, is Novartis generous, is your insurance amazing, or are you paying out of pocket? Because I am literally falling apart head to toe and don't see how I can afford this until 2020.  Sad
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,589
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#2
Fri-22-07-2016, 07:33 AM
Hi Pam,

Welcome to Psoriasis Club.
There are several users of Cosentyx on the forum, e.g. alex.BMW has been approved recently, but he is from the UK.
Maybe Kat from the Forum Helpers knows a little on how that works in the US.

In the mean time, enjoy yourself over here with us.


Cheers,
Caroline
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,200
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#3
Fri-22-07-2016, 10:08 AM
Sorry I can't help, we get it free here in France.

Kat has this thread which may help: Insurance Info for the U.S.

Welcome to Psoriasis Club by the way.

Regards.

Fred.
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PAmerican Offline Author
Member


Posts: 37
Threads: 1
Joined: Jul 2016
Gender: Female
Location: Nyc
Psoriatic Arthritis Score: 36
Treatment: Cosentyx since March 27, 2017
#4
Fri-22-07-2016, 11:49 AM
That is great for France! I have insurance. Patience assistance is limited and my plan has to allow it. I need coverage for my appointments and other meds. The AFA, I support, but was terrible, I was on on it for 2 years in NY.
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PAmerican Offline Author
Member


Posts: 37
Threads: 1
Joined: Jul 2016
Gender: Female
Location: Nyc
Psoriatic Arthritis Score: 36
Treatment: Cosentyx since March 27, 2017
#5
Fri-22-07-2016, 11:51 AM
*Affordable Heathcare Act
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mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,340
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#6
Fri-22-07-2016, 17:31 PM
I am on it. I have private insurance through my employer. With the copay assistant card I pay $0.00 out of pocket.
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PAmerican Offline Author
Member


Posts: 37
Threads: 1
Joined: Jul 2016
Gender: Female
Location: Nyc
Psoriatic Arthritis Score: 36
Treatment: Cosentyx since March 27, 2017
#7
Fri-22-07-2016, 17:59 PM
(Fri-22-07-2016, 17:31 PM)mataribot Wrote: I am on it. I have private insurance through my employer. With the copay assistant card I pay $0.00 out of pocket.

Thanks, and congrats!
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PAmerican Offline Author
Member


Posts: 37
Threads: 1
Joined: Jul 2016
Gender: Female
Location: Nyc
Psoriatic Arthritis Score: 36
Treatment: Cosentyx since March 27, 2017
#8
Sad  Thu-11-08-2016, 18:39 PM
As suspected, I was turned down by my insurance provider yesterday for Cosentyx. I can't take Humira. I won't take methotrexate. So today I took home samples of Otezla which they will deny bc I have a crystal ball and that's what it says. Obviously feeling fantastic today  Wall
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,589
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#9
Thu-11-08-2016, 21:27 PM
(Thu-11-08-2016, 18:39 PM)PAmerican Wrote: As suspected, I was turned down by my insurance provider yesterday for Cosentyx. I can't take Humira. I won't take methotrexate. So today I took home samples of Otezla which they will deny bc I have a crystal ball and that's what it says. Obviously feeling fantastic today  Wall

Certainly understandable that are feeling sh*t. I really don't understand what the producers of cosentyx think, if nobody will get the medication because it is to expensive then they will never get their investments back.
I do think it is positioned way too expensive, I really suspect that this price is deliberately positioned that high, and that the real costs (which we will never hear unless it is leaked by someone involved) are much lower.

Perhaps you should search for alternatives? E.g. Acetretin is available in the US, would that be a possibility for you? Several members do very well on that.
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PAmerican Offline Author
Member


Posts: 37
Threads: 1
Joined: Jul 2016
Gender: Female
Location: Nyc
Psoriatic Arthritis Score: 36
Treatment: Cosentyx since March 27, 2017
#10
Thu-11-08-2016, 21:48 PM
Yes, big pharma and just as bad, crooked insurance co. 

That looks like a straight psoriasis treatment? I have severe psoriatic arthritis. Although my nails are affected, my skin is not.
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