Health Boards
Fri-20-01-2017, 16:18 PM
Hi again folks! 
Sorry it's been a while since my last post, some of you asked me to update on my cosentyx treatment.
I had my first injection of the four weekly 'loading dose' back on December 5th. I had the second and third week and my psoriasis was still rampaging away, I . was bedridden with the whole of my back and sides covered, I am covered all over to some degree but can bear to lay on tummy at moment.
On the Thursday that first week I was so red hot you could feel the heat a couple of feet away. I was shaking, shivering, teeth chattering etc I think its called rigors?? Anyhow, my husband took me to GP, this was just before Christmas and normally she said I would be admitted because she was worried about fluid loss, pain levels, and infection incase it was turning eyrothrodermic. In the end it was decided I would be better off at home, and was given 2 weeks of a strong antibiotic but told I must go to hospital if things got worse. I was using cool packs to keep the heat down and sooth things. It has been truly horrendous with well over 60% body coverage.
A few weeks on I have restarted my cosentyx, the consultant thinks it was another flare on top because I had to stop the methotrexate before starting the injections. I have now had my first monthly jab. We are taking weekly photographs to compare any changes. I am still housebound but not bedridden, I can wear super soft clothes, but I still can't do much, I tire so easily and drink an awful lot. My skin today looks possibly slightly less angry, we are in a routine of using Epiderm or Hydromol ointment (yuk its like spreading on lard!) which is better than the cream as I don't dry out as quick and my husband can now leave me for three hours while he works. But when he gets home and I am greased all over again, I scream in pain and want to go to bed to shut the world out. I find listening to talking books calms me down, and I usually fall asleep then come downstairs a couple hours later. Its a never ending cycle right now but hopefully things will show improvement soon,
I've moaned on a lot today so will say bye for now and hope everyone is having a good day.
Marcia
Sorry it's been a while since my last post, some of you asked me to update on my cosentyx treatment.I had my first injection of the four weekly 'loading dose' back on December 5th. I had the second and third week and my psoriasis was still rampaging away, I . was bedridden with the whole of my back and sides covered, I am covered all over to some degree but can bear to lay on tummy at moment.
On the Thursday that first week I was so red hot you could feel the heat a couple of feet away. I was shaking, shivering, teeth chattering etc I think its called rigors?? Anyhow, my husband took me to GP, this was just before Christmas and normally she said I would be admitted because she was worried about fluid loss, pain levels, and infection incase it was turning eyrothrodermic. In the end it was decided I would be better off at home, and was given 2 weeks of a strong antibiotic but told I must go to hospital if things got worse. I was using cool packs to keep the heat down and sooth things. It has been truly horrendous with well over 60% body coverage.
A few weeks on I have restarted my cosentyx, the consultant thinks it was another flare on top because I had to stop the methotrexate before starting the injections. I have now had my first monthly jab. We are taking weekly photographs to compare any changes. I am still housebound but not bedridden, I can wear super soft clothes, but I still can't do much, I tire so easily and drink an awful lot. My skin today looks possibly slightly less angry, we are in a routine of using Epiderm or Hydromol ointment (yuk its like spreading on lard!) which is better than the cream as I don't dry out as quick and my husband can now leave me for three hours while he works. But when he gets home and I am greased all over again, I scream in pain and want to go to bed to shut the world out. I find listening to talking books calms me down, and I usually fall asleep then come downstairs a couple hours later. Its a never ending cycle right now but hopefully things will show improvement soon,
I've moaned on a lot today so will say bye for now and hope everyone is having a good day.
Marcia