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Psoriasis Club › HealthHealth Boards › Introductions v
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Hey from CC66

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Hey from CC66
CC66 Offline Author
Member


Posts: 16
Threads: 5
Joined: Apr 2017
Gender: Male
Location: Bilston
Psoriatic Arthritis Score: 21
Treatment: Coal tar shampoo
#11
Wed-12-04-2017, 13:06 PM
(Wed-12-04-2017, 12:43 PM)D Foster Wrote: Welcome to the club Chris. not been to your neck of the woods for a very long time.
This is a great place to be and Fred has done us proud with the help of Jim we have s superb P/PsA forum that has more information on it than any other place that I have found.
Sorry to hear that you have PsA , I used Naproxen and it gave me stomach ulcers so the side effects from that was not good, I was on MTX for over nine years, six on oral and just over three years on the injections. It worked very well but the side effects built up to the point where I had to change to injections but then it built up again and I had to stop altogether. Most of my really bad side effects were stomach problems and I often wondered if the previous problems that I had with the Naproxen did not help at all and were a contributory factor.
I works very well for the PsA and it did work up to around 80% for the P , I am on Stelara at the moment which is great for the P but not very good for the PsA and in fact my dermatologist is hopefully changing me over to another bio in fact the same one as Fred which seems to be better for P and PsA.
I have been fine on Stelara but in the last week I have read a survey showing  an increase in cancer of people using Stelara so after 5 years ish on it I think that the time has come to change, the survey may or may not be good that they have done but !!!!.
I know that MTX has got a bad name on here with some people but I think that people are prejudice against it just by hearsay as one thing I have learnt is that what works for one does not necessarily give the same results for someone else and that goes for side effects.
All the best have a good look around and don't mind the inmates as most of them are barmy.

Cheers 'D'   Smile

Life is quite hectic, so won't be here as much as i'd like, but will still drop by often.. I have been very lucky with any meds, no side effects at all. i was on Diclofenac for many years before the Naproxen and no issues at all, so hopefully the Rheumy will switch me to the MTX as sulfasalazine is not working at all. 
I do appreciate everyone's advice and concerns with MTX but as mentioned, i'd likely need to fail on it before trying anything else. fingers crossed i'm one of the lucky ones eh? 

my previous Rheumy almost put me on to MTX 2 years ago, but switched at the last minute to Sulfasalazine and the new Rheumy almost switched me in July last year, but then decided to double the dose on the Sulfasalazine instead.. and now, my thumb has gone from perfectly fine, to distorted to the point of being unusable... maybe if i had gone on to MTX initially, it would be ok now instead of a useless digit that won't move

Roll on the 24th when i can hopefully make progress instead of going round in circles
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Messages In This Thread
Hey from CC66 - by CC66 - Tue-11-04-2017, 07:34 AM
RE: Hey - by Caroline - Tue-11-04-2017, 08:06 AM
RE: Hey - by CC66 - Tue-11-04-2017, 08:54 AM
RE: Hey - by jiml - Tue-11-04-2017, 08:58 AM
RE: Hey - by CC66 - Tue-11-04-2017, 12:42 PM
RE: Hey from CC66 - by Fred - Tue-11-04-2017, 12:47 PM
RE: Hey from CC66 - by CC66 - Tue-11-04-2017, 17:06 PM
RE: Hey from CC66 - by Turnedlight - Tue-11-04-2017, 13:25 PM
RE: Hey from CC66 - by mataribot - Tue-11-04-2017, 21:25 PM
RE: Hey from CC66 - by D Foster - Wed-12-04-2017, 12:43 PM
RE: Hey from CC66 - by CC66 - Wed-12-04-2017, 13:06 PM
RE: Hey from CC66 - by Kat - Thu-13-04-2017, 12:55 PM
RE: Hey from CC66 - by mataribot - Thu-13-04-2017, 18:01 PM
RE: Hey from CC66 - by Caroline - Thu-13-04-2017, 19:58 PM
RE: Hey from CC66 - by Fred - Thu-13-04-2017, 21:00 PM
RE: Hey from CC66 - by D Foster - Fri-14-04-2017, 09:41 AM
RE: Hey from CC66 - by CC66 - Fri-05-05-2017, 09:25 AM
RE: Hey from CC66 - by jiml - Fri-05-05-2017, 10:15 AM
RE: Hey from CC66 - by Caroline - Fri-05-05-2017, 11:15 AM
RE: Hey from CC66 - by Fred - Fri-05-05-2017, 11:34 AM

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