Health Boards
Tue-02-05-2017, 01:26 AM
Hi everyone
Apologies for not replying sooner. I received the newsletter email today which reminded me! Also since I started my thread about my cosentyx story, so much has happened to me health wise, I have not had much opportunity to keep up with online things.
Thank you to all of you who have enquired how I'm doing. I can now report that I started cosentyx December 2016. I had to miss 2 loading doses due to being on antibiotics for infected psoriasis. It after that I carried on have had my month 4 injections last week.
I started to clear around mid February. And then it really was quite dramatic. I could literally see the difference each day.!
BUT NOW the good and the bad news...
My skin is almost clear, apart from three stubborn areas, I cope with these fairly well using epiderm ointment. Yay! Miracle as I honestly never thought I'd get through that last flare up. Even the Drs were shocked how bad I was. However, about 6 weeks after I started treatment I started to have stomach aches. Only mild at ffirst. I felt full after a few mouthfuls, and couldn't eat many foods without getting discomfort and sometimes instant pain. Cramping, churning, lots of acidity and needing to burp a lot. I began to feel very ill. I started to take a bucket to bed because I felt sick nighttime.
I had been getting a lot of joint and bone pain too, so the dermatologist referred me to rheumatology. Blood tests showed I had been getting increasingly anaemic and also had very low vitamin D defficient too. That was last week.
GP thinks I may have an ulcer bleeding maybe IB, due to results of other bloods. I am on a 2 weeks urgent referral for gastroscopy, colonoscopy and ultrasound of abdomen. I am so upset. My skin is fairly amazing. It I have all these horrendous symptoms which may have been caused by the treatment. And to even think of my psoriasis returning to last years state is unbearable.
To top it all I'm due in surgery on my legs on Wednesday to correct my foot function (my legs were badly damaged after previous light therapy and medical negligence in 2008)
phew! Thanks for getting to the end!
I must add - everyone is different, so please don't let this post influence any treatment you on or being offered.
I wish you all good health and healing and gentle hugs xx
Apologies for not replying sooner. I received the newsletter email today which reminded me! Also since I started my thread about my cosentyx story, so much has happened to me health wise, I have not had much opportunity to keep up with online things.
Thank you to all of you who have enquired how I'm doing. I can now report that I started cosentyx December 2016. I had to miss 2 loading doses due to being on antibiotics for infected psoriasis. It after that I carried on have had my month 4 injections last week.
I started to clear around mid February. And then it really was quite dramatic. I could literally see the difference each day.!
BUT NOW the good and the bad news...
My skin is almost clear, apart from three stubborn areas, I cope with these fairly well using epiderm ointment. Yay! Miracle as I honestly never thought I'd get through that last flare up. Even the Drs were shocked how bad I was. However, about 6 weeks after I started treatment I started to have stomach aches. Only mild at ffirst. I felt full after a few mouthfuls, and couldn't eat many foods without getting discomfort and sometimes instant pain. Cramping, churning, lots of acidity and needing to burp a lot. I began to feel very ill. I started to take a bucket to bed because I felt sick nighttime.
I had been getting a lot of joint and bone pain too, so the dermatologist referred me to rheumatology. Blood tests showed I had been getting increasingly anaemic and also had very low vitamin D defficient too. That was last week.
GP thinks I may have an ulcer bleeding maybe IB, due to results of other bloods. I am on a 2 weeks urgent referral for gastroscopy, colonoscopy and ultrasound of abdomen. I am so upset. My skin is fairly amazing. It I have all these horrendous symptoms which may have been caused by the treatment. And to even think of my psoriasis returning to last years state is unbearable.
To top it all I'm due in surgery on my legs on Wednesday to correct my foot function (my legs were badly damaged after previous light therapy and medical negligence in 2008)
phew! Thanks for getting to the end!
I must add - everyone is different, so please don't let this post influence any treatment you on or being offered.
I wish you all good health and healing and gentle hugs xx