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Hi, new here, and so needing people who understand

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Hi, new here, and so needing people who understand
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#9
Fri-19-05-2017, 08:31 AM
Good morning Angela,

I understand fully that the snuggling and cuddling part in your relation is very important and that it might suffer from your psoriasis. I at least hope that your husband realizes that Psoriasis is in no way contagious, but I guess he knows that. Smile

There is a basically simple list of treatments, see below
[Image: 22785628669_4b0008ef68.jpg]

By now you probably found out that in the end the creams, salt and light do not work anymore and they damage your skin.

Then there are the systemics of which personally I prefer the dimethylfumarates (DMF) as they are non-toxic and do not have a risk on cancer. If used well (and if they work for you) they can be used for many years. BUT... the dimethylfumarates for Psoriasis are not available in the US, and I think that is where you are Smile, in the neighborhood of Houston, am I right? Smile
If you live in Poland you can order DMF from e.g. the Netherlands, but doing that from the US, seems to be impossible.
They do have DMF in the US in use for the treatment of MS, it is called Tecfidera, but it is awfully expensive. There is a possibility that Almirall will soon come with a DMF form that may also become available in the US and is affordable.

Then there are the bio's. We have several, even many, members with good experiences on them. They are expensive but they work quickly and have good results.
Yes, there are warnings on the side effects, but I think that in your country they have to give these warnings because of the possibility that a company can be sued for anything, so they warn basically for everything. However there are only few cases of problems.

So that is the landscape, which is still widening.

I myself have been using DMF for a long time, but about a year ago I have changed to an experimental approach. You can read about that in my Journal. My journal will become available to you, as soon as you have posted 5 or 10 posts by yourself. As it is only meant for the real members that are sticking with us, and we all hope that you will.

Cheers,  Wave
Caroline
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Messages In This Thread
Hi, new here, and so needing people who understand - by AngelaT - Thu-18-05-2017, 08:01 AM
RE: Hi, new here, and so needing people who understand - by Caroline - Thu-18-05-2017, 08:18 AM
RE: Hi, new here, and so needing people who understand - by Turnedlight - Thu-18-05-2017, 08:27 AM
RE: Hi, new here, and so needing people who understand - by jiml - Thu-18-05-2017, 09:37 AM
RE: Hi, new here, and so needing people who understand - by Fred - Thu-18-05-2017, 10:36 AM
RE: Hi, new here, and so needing people who understand - by Grizzly Bear - Thu-18-05-2017, 15:42 PM
RE: Hi, new here, and so needing people who understand - by AngelaT - Fri-19-05-2017, 04:46 AM
RE: Hi, new here, and so needing people who understand - by Turnedlight - Fri-19-05-2017, 08:09 AM
RE: Hi, new here, and so needing people who understand - by Caroline - Fri-19-05-2017, 08:31 AM
RE: Hi, new here, and so needing people who understand - by Fred - Fri-19-05-2017, 11:46 AM
RE: Hi, new here, and so needing people who understand - by jiml - Fri-19-05-2017, 12:33 PM
RE: Hi, new here, and so needing people who understand - by Grizzly Bear - Fri-19-05-2017, 14:13 PM
RE: Hi, new here, and so needing people who understand - by KyPrincess - Mon-22-05-2017, 02:50 AM
RE: Hi, new here, and so needing people who understand - by Kat - Mon-22-05-2017, 13:33 PM
RE: Hi, new here, and so needing people who understand - by dyorke - Tue-23-05-2017, 12:44 PM
RE: Hi, new here, and so needing people who understand - by D Foster - Tue-23-05-2017, 14:33 PM

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