Health Boards
Sun-18-06-2017, 21:15 PM
Ok. So, story is, started on Methotrexate 5mg starter dose a couple of weeks ago. Felt a bit rubbish day after, well, knackered in fact. Took 5mg of folic acid daily for the next 6 days. You heard it right 5mgs not mcg. The day before due to take 10mg of MTX, had my bloods done.
Next morning woke up feeling like I had flu. Felt nauseous and headaches. The hospital then phone and said my white blood count was up and also my liver function. Told then wasn't well and they advised to not take the MTX that night but wait and have bloods done the week after. No mention of the folic acid.
By Thursday I was semi consciousness for most of the day and night with excruciating stomach pains, headaches, couldn't get out of bed, couldn't eat or drink, diarrhoea etc. This went on for 3 days. Started to feel a bit better after 5 days but still got bad stomach pains. Headache and dizziness.
My question is: if folic acid is supposed to replace the folic acid that is lost when taking MTX, what happens if you miss a dose of MTX. Where does it go? Is 5mg of folic acid too high or what? What is this poison I am putting in my body? Never again, will I take folic acid or MTX. Just starting to be able to eat and drink a bit. After 2 days I almost called for an ambulance , I thought I was going to die.
I think the folic acid side effects may be worse than the MTX. Do dermatologist really care!!!
Next morning woke up feeling like I had flu. Felt nauseous and headaches. The hospital then phone and said my white blood count was up and also my liver function. Told then wasn't well and they advised to not take the MTX that night but wait and have bloods done the week after. No mention of the folic acid.
By Thursday I was semi consciousness for most of the day and night with excruciating stomach pains, headaches, couldn't get out of bed, couldn't eat or drink, diarrhoea etc. This went on for 3 days. Started to feel a bit better after 5 days but still got bad stomach pains. Headache and dizziness.
My question is: if folic acid is supposed to replace the folic acid that is lost when taking MTX, what happens if you miss a dose of MTX. Where does it go? Is 5mg of folic acid too high or what? What is this poison I am putting in my body? Never again, will I take folic acid or MTX. Just starting to be able to eat and drink a bit. After 2 days I almost called for an ambulance , I thought I was going to die.
I think the folic acid side effects may be worse than the MTX. Do dermatologist really care!!!
