Davieb Cosentyx

[Davieb]

Hi Davieb,

Read your story.
Seems to me you have been the victim of the rheumatologists. They don't know how to treat PsA.
A dermatologist would have given you, Acetretin, Cyclosporine, also MTX, or Dimethylfumarates, and would then have gone to the bio's like Humira, Enbrel, Stelara and finally Cosentyx.

I cant use MTX as it damaged my liver before, however I started on Leflunomide in 2010, which actually worked ok up until around 2015. I noticed then the arthritis was getting worse, it was in my feet shoulder and spinal area, to be fair to my rheumatologist, she kept asking  at my visits if any other areas were affected and up until then it was mainly my hands.
As in my long post in addition to my Leflunomide I was given first of all naproxen, then offered cyclosporine but after reading the possible side effects which could affect my driving (i'm a service engineer) so i do a lot of driving I was not in favour of this, so i was then offered sulfasalzine, which funnily enough was one of the options I was given at the very start of my PSA. It was combination of the lefl.. and sul... that caused all my illness, but in the end got me onto Cosentyx.
When I was in hospital I found out later that my blood tests showed no sign of toxins , so they still don't know what caused my illness, but I'm convinced it was a combo of lefl... and sulf.. that did it.
I only seen a dermatologist at the start in 1978 and then 1989, as my psoriasis is not the common type, I don't have plate type, my skin is virtually clear and has been since around 1978/9, it's my finger and toenails that are affected mostly and then developed PSA in 2009.