Bill's pure dimethylfumarate thread

[jiml]

Just a quick update. All my ideas on taking DMF have gone full circle. Licked off my hand and washed down with cola sounds awful, but it is by far the best way to take the drug. I tried it in Russian caramel, but I could not swallow it and ended up chewing it for ages and got a chemical burn at the back of my mouth for my efforts. The powdered form is too reactive for my taste. Taken with a bland meal makes the side effects milder.

My disease is essentially unchanged and I feel well. I have been dosing at 3*800mg every two weeks since my last test, and I will now increase this to 2*800mg a week until my next blood test in mid-October. The increased neutrophil count after using B12 and folic acid patches prompted me to try B12 and folic acid injections. I have been having 1mg/30mg im weekly for the past seven weeks, and I will stop the injections two weeks before my next blood test. I have also been taking 250mg vitamin E daily, which is a hell of a lot easier than the injections. My hope is that I might boost my lymphocyte count with these measures, but my expectation is that I will not.

Cheers

You have certainly tried just about every combination to get the best results from your DMF, you are right licking off your hand doesn't sound appetising but if that's the best option and it works, you can't ask for more . Does it make a difference if it's with bland food rather than spicy food

It's good your disease is unchanged and being managed effectively ...have you been self injecting the b12 and folic acid ....it will be interesting to see your lymphocyte count, I hope that they will have increased

Great to read your updates Bill ...they are never dull

Jim