Health Boards
Fri-01-12-2017, 15:17 PM
Have a look at this thread NICE Quality Standards for Psoriasis it may help when talking with her dermatologist.
As for getting Stelara it is available in all areas of the UK, but I don't think trying another county would help as they all tend to follow the same protocol. You say your daughter has tried all available treatment, I take it you are meaning Creams, Light Therapy and Oral medication? If that on the case then she will probably need to fail on two Oral treatments before being considered for Stelara. If she has failed on two Oral then yes you should be pushing for Stelara or one of the other Bio's. Having said that all cases are different and it still doesn't mean your daughter will get Stelara or a Bio. It's usually used as a last option and for severe cases.
I'm with Jim if it is causing her to have suicidal thoughts then yes you should be pushing her case and very quickly. Also take a copy of this and fill it in:
Dermatology Life Quality Index (DLQI)
Please also do tell your daughter that she is very welcome to join us here and speak to others who understand. I'm not saying you can't help, but talking with others in the same boat does help. She will find a very friendly bunch of people and some that have or have had depression and suicidal thoughts. We also have a special section [Group Specific] where others are always willing to help.
I understand she may not want to join us, but I can assure you and her that she will be made very welcome and she is welcome to use your account to have a look around or have one of her own.
I have changed the subject heading of this thread to draw more attention to it.
Regards.
Fred.
As for getting Stelara it is available in all areas of the UK, but I don't think trying another county would help as they all tend to follow the same protocol. You say your daughter has tried all available treatment, I take it you are meaning Creams, Light Therapy and Oral medication? If that on the case then she will probably need to fail on two Oral treatments before being considered for Stelara. If she has failed on two Oral then yes you should be pushing for Stelara or one of the other Bio's. Having said that all cases are different and it still doesn't mean your daughter will get Stelara or a Bio. It's usually used as a last option and for severe cases.
I'm with Jim if it is causing her to have suicidal thoughts then yes you should be pushing her case and very quickly. Also take a copy of this and fill it in:
Dermatology Life Quality Index (DLQI)
Please also do tell your daughter that she is very welcome to join us here and speak to others who understand. I'm not saying you can't help, but talking with others in the same boat does help. She will find a very friendly bunch of people and some that have or have had depression and suicidal thoughts. We also have a special section [Group Specific] where others are always willing to help.
I understand she may not want to join us, but I can assure you and her that she will be made very welcome and she is welcome to use your account to have a look around or have one of her own.
I have changed the subject heading of this thread to draw more attention to it.
Regards.
Fred.