Health Boards
Thu-15-03-2018, 18:48 PM
Hey all,
thanks so much for supporting me and following me through this hell I've been going through with the severe flare-up of my plaques and the edema. I'm on my sixth day of a gigantic predinisone burst and it's helping very much to clear up the immediate problem, although i am having about every side effect in the world (retaining enough water for a third-world country, insomnia, etc.)
I had gotten a call from the local referral center Monday morning around 9, and I had phoned my PCP around 820 before work to inform him of the issue and ask for a topical steroid that my insurance would cover (and perhaps a diuretic). The referral center told me even with an urgent referral, the doctor they were going to call my PCP to get me scheduled with wasn't seeing anyone til June. Great, i thought... i'll finish this awful round of sugar-raising, dehydrating prednisone and by the time the appointment happens, it may start flaring up again and i'll be back in misery, hopefully not in the ER getting put back on 47 prednisones in 10 days!
yesterday, i got home and I had a letter from my PCP's office. Two days after I called them, they had sent this letter and it already reached me. Rheumatology referral made and appointment scheduled for... wait for it... March 28!! that's less than 2 weeks from now... and i told my boss, she's been watching me struggle with the prednisone dose and everything so she completely understands i have to go. it's still going to possibly upset the company owners, but they can't deny the referral order. SO RELIEVED!!!
i also talked to a coworker and she told me that asparagus is a natural diuretic, and a local store has it on sale for $.98/lb, so I'm going to be buying myself a big bunch of asparagus to roast and eat the next few days. i literally drink nothing but water all day long but only go to the bathroom a couple of times... i have moon face, i hate the side fx but i have to say it did help with the immediate issue in a huge way. sooooo glad i'm going to rheumatology in 14 days!!!!
thanks so much for supporting me and following me through this hell I've been going through with the severe flare-up of my plaques and the edema. I'm on my sixth day of a gigantic predinisone burst and it's helping very much to clear up the immediate problem, although i am having about every side effect in the world (retaining enough water for a third-world country, insomnia, etc.)
I had gotten a call from the local referral center Monday morning around 9, and I had phoned my PCP around 820 before work to inform him of the issue and ask for a topical steroid that my insurance would cover (and perhaps a diuretic). The referral center told me even with an urgent referral, the doctor they were going to call my PCP to get me scheduled with wasn't seeing anyone til June. Great, i thought... i'll finish this awful round of sugar-raising, dehydrating prednisone and by the time the appointment happens, it may start flaring up again and i'll be back in misery, hopefully not in the ER getting put back on 47 prednisones in 10 days!
yesterday, i got home and I had a letter from my PCP's office. Two days after I called them, they had sent this letter and it already reached me. Rheumatology referral made and appointment scheduled for... wait for it... March 28!! that's less than 2 weeks from now... and i told my boss, she's been watching me struggle with the prednisone dose and everything so she completely understands i have to go. it's still going to possibly upset the company owners, but they can't deny the referral order. SO RELIEVED!!!
i also talked to a coworker and she told me that asparagus is a natural diuretic, and a local store has it on sale for $.98/lb, so I'm going to be buying myself a big bunch of asparagus to roast and eat the next few days. i literally drink nothing but water all day long but only go to the bathroom a couple of times... i have moon face, i hate the side fx but i have to say it did help with the immediate issue in a huge way. sooooo glad i'm going to rheumatology in 14 days!!!!