Health Boards
Sat-02-06-2018, 20:16 PM
So hello to everyone in my boat. We all know the great fun we have with this horrible affliction so I'm here to share my experiences and treatments (and to learn anything new I can along the way)
I have had pretty much all available topical forms of creams and lotions, some success but not really any more than 2/10 - Moved on to light treatment twice, cleared me first time for around four months and second time for around six weeks.
Acetretin, bloody awful to use for me, cracked lips and the feeling that the top couple of layers of skin was sliding across the others on my hands. 0/10 Hated it and didn't clear anything at all...
Next was Cyclosporin, this was a God send. Full clearance for just over two years when I started getting abnormal bloods (kidney) along with swollen gums, so I was taken off it. 10/10
Huge flare up
Next on the list was Fumaderm. Had small improvement with this and the most mental hot flushes ever! Ladies, you have my sympathy. 3/10
Next was Methotrexate. Fairly good at keeping things under control but without actually clearing the red patches, and you can't drink!!!. Again, bad bloods (liver) had me off it within 14 months 6/10
Huge mega never been anywhere this bad flare up
After almost 3 months without any treatment, I have just taken the first two injections on Consentyx last Friday. Fingers crossed this works as I'm running out of options...
I will keep you up to date on how this goes, hope to see an improvement very soon (still in long sleeves and it's now June)
I have had pretty much all available topical forms of creams and lotions, some success but not really any more than 2/10 - Moved on to light treatment twice, cleared me first time for around four months and second time for around six weeks.
Acetretin, bloody awful to use for me, cracked lips and the feeling that the top couple of layers of skin was sliding across the others on my hands. 0/10 Hated it and didn't clear anything at all...
Next was Cyclosporin, this was a God send. Full clearance for just over two years when I started getting abnormal bloods (kidney) along with swollen gums, so I was taken off it. 10/10
Huge flare up
Next on the list was Fumaderm. Had small improvement with this and the most mental hot flushes ever! Ladies, you have my sympathy. 3/10
Next was Methotrexate. Fairly good at keeping things under control but without actually clearing the red patches, and you can't drink!!!. Again, bad bloods (liver) had me off it within 14 months 6/10
Huge mega never been anywhere this bad flare up
After almost 3 months without any treatment, I have just taken the first two injections on Consentyx last Friday. Fingers crossed this works as I'm running out of options...
I will keep you up to date on how this goes, hope to see an improvement very soon (still in long sleeves and it's now June)