Health Boards
Mon-13-08-2018, 18:15 PM
Hi! My name is Haley, I’m 20 years old. I’ve suffered from “dry skin” all my life. When I was younger they said it was eczema. Doctors always said I would grow out of it. I think I was about 13 when they started calling it psoriasis. My psoriasis covers more than 90% of my body. Its definitely gotten worse with age. Ive used topical steroids religiously for most of my life. I have a bunch of other medical stuff going on as well. I have seen a million and one specialists, no one could ever really help me. A few of my specialists tried getting me in to National Institute of Heath and after 3 long years I was finally accepted and had my first visit in February of 2017. I thought that was going to by big break. Finally get a cure and be able to live a normal life. Well, turns out the NIH is stumped too. Patiently waiting, still.
As far as my psoriasis goes we tried Stelara first. I stayed on that a few months, showed no signs of improvement. Then, they put me on Humaira. I’m currently still on the Humaira (40/0.8 ml biweekly). No improvement as far as skin goes but hair (alopecia) and nails have somewhat gotten better. Now I just started Acitreten (7-30-18). I hear a lot of negative things about the drug, but hopefully it will help.
As far as my psoriasis goes we tried Stelara first. I stayed on that a few months, showed no signs of improvement. Then, they put me on Humaira. I’m currently still on the Humaira (40/0.8 ml biweekly). No improvement as far as skin goes but hair (alopecia) and nails have somewhat gotten better. Now I just started Acitreten (7-30-18). I hear a lot of negative things about the drug, but hopefully it will help.