[split] Dimethylfumarates and Psoriasis

[jiml]

Apart from us normal people there are a number of very vague institutions in Europe that must be crowded with people who decide over our well being. That is weird and scary as "WE" are the real professionals on psoriasis... Aren't we?

If you read, or try to read, this article [web]https://www.clinicaltrialsregister.eu/ctr-search/trial/2012-000055-13/DE[/web] you will get an idea of what I mean.
Lots of people are involved in trials which concern our health, but of which we don't have a clue of what is happening there.
This case is about DMF and Fumaderm.
Rumours say that Almiral, the producer of Fumaderm, is close to a European wide registration of Fumaderm.
Psorinovo is far behind in this process, while it's characteristics may even be better and the working substances are equal.
Also Rumours are that biogen is trying to interfere in some way in the DMF market.
Overall interest in DMF is rising quickly. In my opinion due to the fact that biog** has seen and opportunity to earn a lot of money with it over the backs of the MS patients.

I think I understand what you mean by professionals in the sense that we are experts on what works with our bodies, and are confronting psoriasis on a daily basis, rather more so than someone sitting in an office ticking boxes

Whilst I agree that we need these trials to determine the safety of the drugs we take , and after wading through that register of a test, I noticed there were no results, or if there were I missed them.. And the date of the trial was 2012.
It is quite scary that some committee in Central Europe could decide whether we can continue with a drug that has been working well for over twenty years

Biogen are marketing a very similar DMF drug Tecfidera for the treatment of MS, but hopefully they will continue to produce Fumaderm as well