Jims journey on Skilarence

[Caroline]

Apologies for the hijack Jim, I've been banging on about wanting to try a DMF medication for years now and my Dermys are VERY resistant to the drug. Primarily it came down to cold hard cash. As Fumaderm was and is still not fully licenced for use on Ps the Dermy had to go to the Hospital trust begging for funding and as I am lead to believe all bar one patient succeeded on the drug. The trust put a 12 week limit for clearance and if it was not substantial the funding got pulled. Now in my experience 12 weeks on any oral has never given me anything like a substantial clearance. Most dropped the drug through the  side  effects  though. This 'medical' opinion and the NICE guidelines for Skilarence don't seem to help. Even though Skilarence is on ticket for Ps it still has to be funded by the local Trust and although it's not the eye wateringly extortionate cost of a bio it is still expensive. Maybe they need to talk to Bill   

Yes, they do need to talk to Bill. It is a stubborn group.. which again... is not backed by much knowledge. (did I say that before ?? )
And viewing this Only 1/4 patients achieved complete skin clearance after 6 months of biologics, a clearance time of 12 weeks is absurd.... just rub it in John.
And ... not to mention the costs of a biological.

Yes. Most are dropping because of the side effects. Almirall has been warned, but did not listen, therefore we still have the slow release version in order to try for for when side effects, that is tummy ache, are too worse.