Introduction by Trampledrosie

[Caroline]

Hello Rosie,

Welcome to Psoriasisclub !

Normally I am much faster in my reactions and I had seen your arrival on the forum already very quickly. But I am currently living a very busy time, so past week I hardly have been on the forum.

Quite a nasty form of psoriasis you have.
Did you already discuss the possibility of biologics, specifically for your kind of the disease?

Cheers,
Caroline

Hi Caroline! Thanks!
It is quite nasty. So far I have tried a number of steroid creams, uvb light (didn’t work), now puva light which has helped the bottoms of my feet a little but it is spreading up the sides and now the doctor said the tops of my feet and ankles) broke out in bumps and crazy itchiness this past week) look more like eczema! My legs have also started itching like crazy. Tried numerous Cerave and Cetaphil creams, bleach soaks, salt soaks, nothing helped. So she said only use betaderm and Vaseline, cold compresses and cool water soaks for now. She is going to continue puva until my regular dermatologist sees me. I don’t want to take methotrexate (my partner tried that for his PRP and it came back with a vengeance as soon as he stopped) but retinoids and biologics are the next steps I guess. So frustrating. I will have a look at the biologics threads on here!

Hi Rosie,

Personally I think that most steroids finally will not work, as they are only targeting the result, the symptoms of the disease. The disease basically has nothing to do with your skin, but is an internal immune reaction that finally expresses on the skin.
That is why Dave’s MTX treatment, though a terrible medication, works for him, it suppresses the reaction of the immune system and that makes that his psoriasis disappears.

Unfortunately identical are the PUVA treatments. They only work for the symptoms and only temporary. With the additional result that your skin even gets worse because of the hard radiation. I am sorry to say that, but it is necessary to realise that.

So, finally you have to do something to get control of your immune system to get results. Now that often finally means that you will have to go to immune suppressors or biologics, which are basically also immune suppressors, but more selective.
Immune suppressors are there in pills, like Acetretin, methotrexate, ciclosporine and Dimethylfumarate (where to my idea, that is not a real immune suppressor)
And the injections which are in the mean time a great scala of biologics (there are several thread about them). Not all biologics will work for you, but I vaguely can remember myself that there are a few that specifically work for PPP. (I will try to search my data if I can find that)