Health Boards
Wed-02-04-2025, 16:41 PM
Hi Alleyes,
That is a nasty condition, GPP. I have heard that it mostly appears with people who have an Asiatic roots... but perhaps also Scottish???
I know that IFPA, the international psoriasis foundation/association or whatever. Have done a project about Rare diseases which also concerned GPP. So maybe you can find some more information on their website.
Also I have seen that it had been picked up by the Dutch association in some kind of project. ...... searching..... yes, I see a little movie on the IFPA site from the Dutch association.
Vaguely I remember that there is a new biologic, that should work against GPP. I thought that was Soytiktu... but I am not sure... Fred ????
It is indeed very rare, so even dermatologists only have minor knowledge, I guess depending on their experience of having treated GPP in an earlier stage.
Caroline
That is a nasty condition, GPP. I have heard that it mostly appears with people who have an Asiatic roots... but perhaps also Scottish???
I know that IFPA, the international psoriasis foundation/association or whatever. Have done a project about Rare diseases which also concerned GPP. So maybe you can find some more information on their website.
Also I have seen that it had been picked up by the Dutch association in some kind of project. ...... searching..... yes, I see a little movie on the IFPA site from the Dutch association.
Vaguely I remember that there is a new biologic, that should work against GPP. I thought that was Soytiktu... but I am not sure... Fred ????
It is indeed very rare, so even dermatologists only have minor knowledge, I guess depending on their experience of having treated GPP in an earlier stage.
Caroline