Health Boards
Mon-03-10-2011, 11:49 AM
First things first I take it you are seeing a dermatologist ? if not you should be.
I and others do know what your going through. I suffered with bad depression many years ago because of psoriasis and it is a common thing for people to suffer with it. however I did manage to cure myself of it without any medical help in the end. but that's another story.
Before I try to answer your questions I always tell people you must get it in your head that there is No Cure! yes you will look for one and yes you will try all sorts of things but the sooner you accept you have psoriasis for probably the rest of your life the better. Not what you wanted to hear I know but it's not the end of the world there is lots of help out there that can help you cope with it and possibly get it in remission.
I hope I can offer some help to you questions.
1: I can't take my daughter swimming: yes you can! just explain to her that you don't want others to see your psoriasis, but you will go with her and watch.
2: I will NEVER be able to wear a t-shirt or a vest out in public again: you definitely will! It just takes time start by rolling up long sleeves, you can always pull them back down in a hurry.
3: I will NEVER be able to wear a skirt/dress/cropped trousers in public again: Can't help with that one as I don't wear skirts/dresses/ or cropped trousers. (that comment was supposed to make you smile).
4: I can no longer wear my hair in a ponytail due to it being so bad on my scalp: It will take time but you will find something that will help clear your scalp. also have a ponytail and as I said about T Shirts, just let your hair down quickly if you need too.
5: It fu*king hurts: Yep it does I cant change that but you must keep moisturising and wait till you find the right treatment for you.
6: I can't sit in the garden: Wait till your neighbours have gone out and just have something handy to cover up with. or find a quiet patch up the park.
7: Can't go on holiday: Go abroad where there is lots of sun and uncover. no one knows you and they have better things to do than look at you.
8: Can't play team sports: Cant help! I don't do sport. (go on laugh you know you want to).
9: Can't go to the gym: like you said (As Above)
10: Can't think, hey it's my birthday, lets get the girls together and go for a spa day or out for a meal: talk to your girl friends and explain how it affects you. if they are genuine they will help you.
11: Can't join in on friends hen do's or birthday days out as they usually involve the above: As Above.
12: Can't have a love life: You can once you find someone who doesn't care what you like like and just wants to be with you.
13: Can't get a hair cut: Phone around different hairdresser and ask them if they have someone who knows what psoriasis is. some are trained to deal with scalp problems.
14: Answering the front door: Just do it, it could be fun telling a salesman to F off and take it out on them. they are used to it.
I honestly don't have all the answers but the most important things are Talk about it, Accept it, Keep positive, Moisturise, expose your skin. and start to claim your life back. You only get one and you should enjoy it.
Hope I have helped a bit. if not fire away I will come up with something to make you think life is worth living.
Sorry I took so long but I'm eating cake!
Fred.
I and others do know what your going through. I suffered with bad depression many years ago because of psoriasis and it is a common thing for people to suffer with it. however I did manage to cure myself of it without any medical help in the end. but that's another story.
Before I try to answer your questions I always tell people you must get it in your head that there is No Cure! yes you will look for one and yes you will try all sorts of things but the sooner you accept you have psoriasis for probably the rest of your life the better. Not what you wanted to hear I know but it's not the end of the world there is lots of help out there that can help you cope with it and possibly get it in remission.
I hope I can offer some help to you questions.
1: I can't take my daughter swimming: yes you can! just explain to her that you don't want others to see your psoriasis, but you will go with her and watch.
2: I will NEVER be able to wear a t-shirt or a vest out in public again: you definitely will! It just takes time start by rolling up long sleeves, you can always pull them back down in a hurry.
3: I will NEVER be able to wear a skirt/dress/cropped trousers in public again: Can't help with that one as I don't wear skirts/dresses/ or cropped trousers. (that comment was supposed to make you smile).
4: I can no longer wear my hair in a ponytail due to it being so bad on my scalp: It will take time but you will find something that will help clear your scalp. also have a ponytail and as I said about T Shirts, just let your hair down quickly if you need too.
5: It fu*king hurts: Yep it does I cant change that but you must keep moisturising and wait till you find the right treatment for you.
6: I can't sit in the garden: Wait till your neighbours have gone out and just have something handy to cover up with. or find a quiet patch up the park.
7: Can't go on holiday: Go abroad where there is lots of sun and uncover. no one knows you and they have better things to do than look at you.
8: Can't play team sports: Cant help! I don't do sport. (go on laugh you know you want to).
9: Can't go to the gym: like you said (As Above)
10: Can't think, hey it's my birthday, lets get the girls together and go for a spa day or out for a meal: talk to your girl friends and explain how it affects you. if they are genuine they will help you.
11: Can't join in on friends hen do's or birthday days out as they usually involve the above: As Above.
12: Can't have a love life: You can once you find someone who doesn't care what you like like and just wants to be with you.
13: Can't get a hair cut: Phone around different hairdresser and ask them if they have someone who knows what psoriasis is. some are trained to deal with scalp problems.
14: Answering the front door: Just do it, it could be fun telling a salesman to F off and take it out on them. they are used to it.
I honestly don't have all the answers but the most important things are Talk about it, Accept it, Keep positive, Moisturise, expose your skin. and start to claim your life back. You only get one and you should enjoy it.
Hope I have helped a bit. if not fire away I will come up with something to make you think life is worth living.
Sorry I took so long but I'm eating cake!
Fred.