Health Boards
Tue-09-10-2012, 09:56 AM
Hey all
great idea with a new forum, very clean design I must say.
I wanted to finally join a PSO forum to share my thoughts and worries and experiences with you other sufferers.
First off a little about me.
Living in North of Europe in a country called Denmark near the city of Copenhagen.
I am married to my wife and we have 2 beautiful boys of 3 years and 4 months.
I am 34 years old and have had PSO since i was around 21 years old.
In Denmark we have gov. paid healthcare which can be a great benefit but also requires that you go trough a lot of loops to be eligible to the biologics.
It is required that you try all other treatments before you can get the biologics.
Thus I started seriously 6 years ago to get on the new biologics, since my PSO was getting worse. Today I have plagues on the lower legs, lower arms, a few spots here and there. Nails also hit. Lately feet and hands are getting attack sometimes but still not that bad.
here is short brief of my trials, I will write more later on
generally I will say, I have positively given up on wonder treatments. I read the book called Sunbathing Naked and Other Miracle Cures by Guy Kennaway, which I will recommended all PSO to read, it is a fun and upbeat description on how to live with PSO.
I stated out with UVB treatments which had some effect but PSO came back fast after that. Right now I am on UVB again since I found out that you since have to be fairly clear before you can get any effect form the UVB treatments.
Daivobet/Dovobet/Xamiol
Great drug, but afraid of long term use if I end getting crushing syndrome, have gained weight when on Daivobet. Xamiol is a gel of daivobet great for the scalp. still us every other day.
MTX
was on for 6 months. Sick with fever for 3 weeks, generally looked bad and was often sick from nothing. Effect was pretty good on PSO.
Remicade
3 days after 1 injection lameness came to the hands, then the whole body could not move, was taken to hospital by ambulance, MRI scan showed nothing, but we needed up stopping treatment after that.
enbrel/humirca
Doctor and !I rules these out becasue of the recently discovered adverse effects of getting MS from these drugs. also same type as Remicade.
Cream/baby oil
lots of cream and oil every day, twice a day. keep the doctor away.
Next step?
Stelara?
Doctors can order it to me now, but i am afrid of the adverse effects and if as Fred says only works 2 years.
for now i just wanted to say hey to all
great idea with a new forum, very clean design I must say.
I wanted to finally join a PSO forum to share my thoughts and worries and experiences with you other sufferers.
First off a little about me.
Living in North of Europe in a country called Denmark near the city of Copenhagen.
I am married to my wife and we have 2 beautiful boys of 3 years and 4 months.
I am 34 years old and have had PSO since i was around 21 years old.
In Denmark we have gov. paid healthcare which can be a great benefit but also requires that you go trough a lot of loops to be eligible to the biologics.
It is required that you try all other treatments before you can get the biologics.
Thus I started seriously 6 years ago to get on the new biologics, since my PSO was getting worse. Today I have plagues on the lower legs, lower arms, a few spots here and there. Nails also hit. Lately feet and hands are getting attack sometimes but still not that bad.
here is short brief of my trials, I will write more later on
generally I will say, I have positively given up on wonder treatments. I read the book called Sunbathing Naked and Other Miracle Cures by Guy Kennaway, which I will recommended all PSO to read, it is a fun and upbeat description on how to live with PSO.
I stated out with UVB treatments which had some effect but PSO came back fast after that. Right now I am on UVB again since I found out that you since have to be fairly clear before you can get any effect form the UVB treatments.
Daivobet/Dovobet/Xamiol
Great drug, but afraid of long term use if I end getting crushing syndrome, have gained weight when on Daivobet. Xamiol is a gel of daivobet great for the scalp. still us every other day.
MTX
was on for 6 months. Sick with fever for 3 weeks, generally looked bad and was often sick from nothing. Effect was pretty good on PSO.
Remicade
3 days after 1 injection lameness came to the hands, then the whole body could not move, was taken to hospital by ambulance, MRI scan showed nothing, but we needed up stopping treatment after that.
enbrel/humirca
Doctor and !I rules these out becasue of the recently discovered adverse effects of getting MS from these drugs. also same type as Remicade.
Cream/baby oil
lots of cream and oil every day, twice a day. keep the doctor away.
Next step?
Stelara?
Doctors can order it to me now, but i am afrid of the adverse effects and if as Fred says only works 2 years.
for now i just wanted to say hey to all
