Health Boards
Thu-19-02-2015, 16:45 PM
Hi All,
I am hoping someone might be able to give me some advice on Fumaderm.
To give you some background, I have had moderate widespread psoriasis for the last 6 years. It started as one small 'dot' on one arm and quickly spread pretty much everywhere (arms, legs, trunk, inside nose & ears, face, scalp, PPP on palms and soles). I have been prescribed around 15 steroid/vit D analog creams which have maintained my skin but never helped clear any of it up & of course didn't stop new patches from forming.
I have had two courses of UVB treatment, both of which compeltely cleared my skin but only for about a week after finishing each 37 session course. My psoriasis would be back to 'normal' within a month of finishing.
I went to see a new Dermatologist who agreed we needed to look at other options as it wasn't even really feasible for me to even apply the creams as I had SO many isolated patches, all of which were extremely red and inflamed.
We discussed the options available to me and decided to give Fumaderm a try. I started out on just 30mg a day and now 6 months later I have just increased my dose from 6x120mg (720mg total daily) up to 8x120mg (960mg total daily).
My skin has responded fantastically and pretty much all my old patches have gone, leaving only discoloured skin. However, I'm still getting a LOT of new small patches mainly around my hips and the top of the backs of my legs. My Derm advised me to go up to 8 per day if they hadn't cleared up.
I'm a little worried that this dose is VERY high but I have nothing to compare it to. My blood work is all fine but now I'm getting the horrendous gastric side effects again & would just generally like to know about other people's experiences.
Any advice appreciated!
Thanks :-)
I am hoping someone might be able to give me some advice on Fumaderm.
To give you some background, I have had moderate widespread psoriasis for the last 6 years. It started as one small 'dot' on one arm and quickly spread pretty much everywhere (arms, legs, trunk, inside nose & ears, face, scalp, PPP on palms and soles). I have been prescribed around 15 steroid/vit D analog creams which have maintained my skin but never helped clear any of it up & of course didn't stop new patches from forming.
I have had two courses of UVB treatment, both of which compeltely cleared my skin but only for about a week after finishing each 37 session course. My psoriasis would be back to 'normal' within a month of finishing.
I went to see a new Dermatologist who agreed we needed to look at other options as it wasn't even really feasible for me to even apply the creams as I had SO many isolated patches, all of which were extremely red and inflamed.
We discussed the options available to me and decided to give Fumaderm a try. I started out on just 30mg a day and now 6 months later I have just increased my dose from 6x120mg (720mg total daily) up to 8x120mg (960mg total daily).
My skin has responded fantastically and pretty much all my old patches have gone, leaving only discoloured skin. However, I'm still getting a LOT of new small patches mainly around my hips and the top of the backs of my legs. My Derm advised me to go up to 8 per day if they hadn't cleared up.
I'm a little worried that this dose is VERY high but I have nothing to compare it to. My blood work is all fine but now I'm getting the horrendous gastric side effects again & would just generally like to know about other people's experiences.
Any advice appreciated!
Thanks :-)