Health Boards
Sun-19-04-2015, 19:30 PM
Hi all
Just popping in to give an update.
Side effects lessened after 4-5 weeks on 5 a day, so got bloods done then started on 6 a day. I was 4 days in and side effects were kicking in nicely, but was determined to stick with it, as skin not good at all on legs and some new spots appearing on hands. Anyway got blood results and lymphocyte count at 0.5. As this had been at 5 a day I didn't want to let it drop any further on 6.
I phoned my derm's secretary and asked her to ask for advice from derm as I'm not due back for a month .
The secretary got back to me and I was advised to go back down to 5, apparently my system appears to be tolerating 5 better, not sure why when the count was at 0.5 on 5 a day. I explained that my skin had stopped responding on 5 and told it may just take longer.
I'm not sure if this will be the case as I've yet to be on the full dose for any length of time. Also not sure if my lymphocyte count will stay static, increase or decrease.
Does anyone have experience of being 4 months in on Fumaderm but not at full dose. I'm not sure if I'm one of the people who doesn't do well on them? I hope not as these were my last chance of any normality.
Not booked a holiday for this year as not brave enough to go looking like this! Didn't have a holiday last year either as skin a mess. Previously went abroad after 3 months of UVB , but that's a no no now.
Well thanks for reading and hope all are well.
Angie
Just popping in to give an update.
Side effects lessened after 4-5 weeks on 5 a day, so got bloods done then started on 6 a day. I was 4 days in and side effects were kicking in nicely, but was determined to stick with it, as skin not good at all on legs and some new spots appearing on hands. Anyway got blood results and lymphocyte count at 0.5. As this had been at 5 a day I didn't want to let it drop any further on 6.
I phoned my derm's secretary and asked her to ask for advice from derm as I'm not due back for a month .
The secretary got back to me and I was advised to go back down to 5, apparently my system appears to be tolerating 5 better, not sure why when the count was at 0.5 on 5 a day. I explained that my skin had stopped responding on 5 and told it may just take longer.
I'm not sure if this will be the case as I've yet to be on the full dose for any length of time. Also not sure if my lymphocyte count will stay static, increase or decrease.
Does anyone have experience of being 4 months in on Fumaderm but not at full dose. I'm not sure if I'm one of the people who doesn't do well on them? I hope not as these were my last chance of any normality.
Not booked a holiday for this year as not brave enough to go looking like this! Didn't have a holiday last year either as skin a mess. Previously went abroad after 3 months of UVB , but that's a no no now.
Well thanks for reading and hope all are well.
Angie