Health Boards
Thu-07-05-2015, 21:00 PM
I have been asked many times by friends and family "What's it like having psoriasis" I always say it is difficult to explain, I usually say you will never understand. A bit like a Man can never understand what it feels like for a Woman to have premenstrual syndrome, and a Woman can never understand how it feels for a Man to get a whack in the testicles.
Sometimes however I do try to get it across, and I was wondering how other members would explain What it's like having psoriasis?
I would say first off when you find out you have psoriasis, it's not so much of a big deal as you are given some cream to slap on and it will go away. That by the way is absolute bull**** as you soon find out once you get it it's you buddy for the rest of your life.
You constantly search for a cure, you listen to advise from your family and friends, you spend a fortune on fake scams or expensive simple moisturises, you believe it will go away one day. But as much as you appreciate your friends and family trying to help, one day you realise it's not going to go away.
That's when the fun starts as you suddenly become aware that others are always looking at you, you also start to feel like a leper, you start to get self conscious over your appearance, you start to get depression. You know the genuine members of your family and friends are trying to help, but sometimes you just wish they would leave you alone to have a damn good cry.
After a few years you realise there is no cure and you're stuck with it, you are that leper that no one wants to know, you are that person that everyone looks at, you still get friends and family saying "Have you seen in this magazine how this person got cured" Grrrrrrrrrrrrrrrrrrrrrrrrrr Leave me alone.
Your life is completely changed, you are constantly checking for psoriasis on your clothes or in your hair. You don't want to visit other peoples houses as you will feel so embarrassed if you notice even a tiny bit of psoriasis on their sofa, and as much as you try with all those greasy creams you just can't hide the psoriasis on your face or your cracked and bleeding hands.
It goes on and on and on, your friends and family will keep telling you to try this or try that. Your doctor will keep throwing creams at you and telling you to come back if it's not clear in a few months. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr It Won't Fooking well clear
Then one day you are covered in the stuff, there are flakes as big as large coins, you are pulling out clumps of hair, you are leaking sebum or in some cases blood from those horrendous sores all over your body. You itch like hell and then you start to see how big a scale you can get off in one piece, it becomes an addiction to just keep picking at those scales to see if you can better your last one.
One day you notice you are starting to get more and more tired and you just feel like crying yourself to sleep, you may even get to the stage of thinking enough is enough and you just can't cope any more. And still your friends and family (if you have any left) say "Why don't you try this" Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr
You want me to explain what it's like having psoriasis? Go and rip the top layer your skin off and rub stinging nettles all over the raw flesh, and just for good measure rub in a good dose of Salt and Sand. Wait don't go away were not done yet, you now need to go walking down the street with everyone pointing at you, you also have to stop going out as you feel to embarrassed by your appearance, you also have to keep going to your Doctor who will give you even more greasy cream or if your lucky enough you may get something like a modern treatment (No change of plan keep trying the cream or a bit of sitting under a light) then one day you get slight relief but it comes back again, you are sore you look like a leper, your confidence has by now completely gone out the window.
Hell I can't explain what it's like having psoriasis, and don't even get me going on psoriatic arthritis (I would rather be covered in flakes of dead skin as opposed to not being able to move) But I can tell you this, be very very careful of what you think of people with psoriasis, as It Could Be You Next.
To sum up: It's painful, annoying, embarrassing, and will change your life for ever.
Maybe other members will post their answer to "What's it Like Having Psoriasis"
Sometimes however I do try to get it across, and I was wondering how other members would explain What it's like having psoriasis?
I would say first off when you find out you have psoriasis, it's not so much of a big deal as you are given some cream to slap on and it will go away. That by the way is absolute bull**** as you soon find out once you get it it's you buddy for the rest of your life.
You constantly search for a cure, you listen to advise from your family and friends, you spend a fortune on fake scams or expensive simple moisturises, you believe it will go away one day. But as much as you appreciate your friends and family trying to help, one day you realise it's not going to go away.
That's when the fun starts as you suddenly become aware that others are always looking at you, you also start to feel like a leper, you start to get self conscious over your appearance, you start to get depression. You know the genuine members of your family and friends are trying to help, but sometimes you just wish they would leave you alone to have a damn good cry.
After a few years you realise there is no cure and you're stuck with it, you are that leper that no one wants to know, you are that person that everyone looks at, you still get friends and family saying "Have you seen in this magazine how this person got cured" Grrrrrrrrrrrrrrrrrrrrrrrrrr Leave me alone.
Your life is completely changed, you are constantly checking for psoriasis on your clothes or in your hair. You don't want to visit other peoples houses as you will feel so embarrassed if you notice even a tiny bit of psoriasis on their sofa, and as much as you try with all those greasy creams you just can't hide the psoriasis on your face or your cracked and bleeding hands.
It goes on and on and on, your friends and family will keep telling you to try this or try that. Your doctor will keep throwing creams at you and telling you to come back if it's not clear in a few months. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr It Won't Fooking well clear
Then one day you are covered in the stuff, there are flakes as big as large coins, you are pulling out clumps of hair, you are leaking sebum or in some cases blood from those horrendous sores all over your body. You itch like hell and then you start to see how big a scale you can get off in one piece, it becomes an addiction to just keep picking at those scales to see if you can better your last one.
One day you notice you are starting to get more and more tired and you just feel like crying yourself to sleep, you may even get to the stage of thinking enough is enough and you just can't cope any more. And still your friends and family (if you have any left) say "Why don't you try this" Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr
You want me to explain what it's like having psoriasis? Go and rip the top layer your skin off and rub stinging nettles all over the raw flesh, and just for good measure rub in a good dose of Salt and Sand. Wait don't go away were not done yet, you now need to go walking down the street with everyone pointing at you, you also have to stop going out as you feel to embarrassed by your appearance, you also have to keep going to your Doctor who will give you even more greasy cream or if your lucky enough you may get something like a modern treatment (No change of plan keep trying the cream or a bit of sitting under a light) then one day you get slight relief but it comes back again, you are sore you look like a leper, your confidence has by now completely gone out the window.
Hell I can't explain what it's like having psoriasis, and don't even get me going on psoriatic arthritis (I would rather be covered in flakes of dead skin as opposed to not being able to move) But I can tell you this, be very very careful of what you think of people with psoriasis, as It Could Be You Next.
To sum up: It's painful, annoying, embarrassing, and will change your life for ever.
Maybe other members will post their answer to "What's it Like Having Psoriasis"