Health Boards
Thu-14-05-2015, 16:08 PM
I would certainly write formally and ask for an earlier appointment as the psoriasis is beginning to return already. Tell them in writing that you know the effect it's going to have on your body and an even worse effect on your mind, explain that you are newlywed and for the first time you have felt "normal" on cyclosporine, and the fact that it's made you susceptible to throat infections is plainly obvious.
All you are asking is for the appointment to be brought forward to say one month, so the ciclosporin is out of your system and you can be monitored and got onto another treatment before psoriasis and the arthritis run riot on your body
Noooo. Don't accept going back to the flaky sore person you were
My guess is you may be offered acetretin, that's in his armoury and could be effective for you , many here are on it and staying clear , or another option is humira , it's a bio but I think it's lower cost than the stelara .
Stelara would be ideal if you can get it I'm sure Fred will give you links to the pages to read here , be ready go armed with knowledge, it's a stronger position if he thinks you know about the various medications
I would like to see you on Fumaderm as I think that would work on your PsA and psoriasis , but it is only my opinion and the dermatologist I seem to remember ruled that out last time.
But honestly don't just sit and wait .... For you it's not like just another clinic, which I go to every three months, and to be honest I don't think anyone would mind being kept waiting another half hour if they could slot you in, ring his secretary bleat on her shoulder, I would cry if it helps to sob down the phone,
They think they have given you an appointment and you are happy..... TELL THEM YOURE NOT sorry for shouting
All you are asking is for the appointment to be brought forward to say one month, so the ciclosporin is out of your system and you can be monitored and got onto another treatment before psoriasis and the arthritis run riot on your body
Noooo. Don't accept going back to the flaky sore person you were
My guess is you may be offered acetretin, that's in his armoury and could be effective for you , many here are on it and staying clear , or another option is humira , it's a bio but I think it's lower cost than the stelara .
Stelara would be ideal if you can get it I'm sure Fred will give you links to the pages to read here , be ready go armed with knowledge, it's a stronger position if he thinks you know about the various medications
I would like to see you on Fumaderm as I think that would work on your PsA and psoriasis , but it is only my opinion and the dermatologist I seem to remember ruled that out last time.
But honestly don't just sit and wait .... For you it's not like just another clinic, which I go to every three months, and to be honest I don't think anyone would mind being kept waiting another half hour if they could slot you in, ring his secretary bleat on her shoulder, I would cry if it helps to sob down the phone,
They think they have given you an appointment and you are happy..... TELL THEM YOURE NOT sorry for shouting