Fumaderm advice wanted

[jiml]

Hi everyone,

Sorry its been AGES since I was last here...I hope everyone's doing well!  

I have no idea if I am putting this in the right place either as this is literally the only forum I have ever used but I am looking for some advice and can't find anything anywhere as usual!

So...months ago, I finally got my Fumaderm dose down to 360mg a day and my skin stayed clear for months on this dosage. Everything was going really well and my stomach calmed down too.

However, a couple of months ago my skin suddenly started to flare up again (lots of new small patches, getting redder, itchier and flakier by the day). I have not had any infections or illnesses which could have triggered this. I immediately went back up to 480mg a day but it doesn't seem to be making any difference and I am still seeing new patches every day. Needless to say the stomach issues have returned too so I visited my GP who has prescribed Omeprazole. Unfortunately, my GP has never heard of Fumaderm so was unable to offer any advise. She is writing to my consultant but this will take time and my next appointment isn't until January.

I'm extra frustrated as I'm supposed to be running a marathon in April but can't train right now due to the stomach problems. Slightly concerned Fumaderm is no longer working so well for me! :-(

Has anyone had a similar experience?

Pls let me know if you can offer any advice?

Thanks heaps

Kath

Hi Kath you are in the right place. This is your Fumaderm thread and you ask away . I will tell you what I can ....at the moment you are on 4 tablets a day so there is room to increase the dose , usually a phone call to your dermatologists secretary will get you an answer, basically you need to know if kidney and liver functions are good, if your lymphocyte count is within the normal range between 1-3
If these levels are good there is no reason not to increase the dose. To 5 a day, then after a week even up to 6 a day .... But don't do it until you have cleared it with the dermatologist ...
He does not really need to see you your doctor can do the blood tests and relay them to the hospital .

When I dropped my dose to low (3) a day my psoriasis started to return and I upped my dose twice to get clear again. I went up to 4 a day and it took weeks to get back clear...
We are all different and need different strength meds to work. I would certainly up my dose ... It should not increase the side effects .
Watch what you eat and take yogurt with the tablets

This is all I can think of but I'm sure others may have different opinions. So good luck , and ask away
Jim