Health Boards
Sat-12-12-2015, 19:42 PM
Hey!
Firstly I want you to know I understand just how worried you are but I want to reassure you that having Psoriasis is not necessarily a terrifying prospect for your son. I was diagnosed at the age of 4 and am now 38. I was diagnosed with PA a few years ago but this is a condition which affects a very very small sub population of people (both with and without skin psoriasis), the uveitis is even rarer. I know there is a lot of info out there on what "could happen" along the line for someone with P but honestly the worst case scenarios are the ones you are concentrating on and are probably the least likely to happen.
The most important thing for the moment is to speak to specialists, get the best course of treatments for your son and educate him about what is happening to his body (in words he understands). That will set him up for dealing with negativity (sadly he will experience that) as he grows up.
I know a lot of people with P, diagnosed at different ages with different severities of the condition and there is no trend that I can see between age of onset and severity. I also think it's worth adding that the genetics that cause P and PsA are thought (at present) to be different so having one does not mean you will get the other.
Glad to be a sounding post if you have any questions.
Krissie
Firstly I want you to know I understand just how worried you are but I want to reassure you that having Psoriasis is not necessarily a terrifying prospect for your son. I was diagnosed at the age of 4 and am now 38. I was diagnosed with PA a few years ago but this is a condition which affects a very very small sub population of people (both with and without skin psoriasis), the uveitis is even rarer. I know there is a lot of info out there on what "could happen" along the line for someone with P but honestly the worst case scenarios are the ones you are concentrating on and are probably the least likely to happen.
The most important thing for the moment is to speak to specialists, get the best course of treatments for your son and educate him about what is happening to his body (in words he understands). That will set him up for dealing with negativity (sadly he will experience that) as he grows up.
I know a lot of people with P, diagnosed at different ages with different severities of the condition and there is no trend that I can see between age of onset and severity. I also think it's worth adding that the genetics that cause P and PsA are thought (at present) to be different so having one does not mean you will get the other.
Glad to be a sounding post if you have any questions.
Krissie