Health Boards
Mon-22-02-2016, 17:24 PM
Hi guys,
I've been browsing the site unregistered, like an undercover keyboard ninja for a few days now and have found the site very helpful and learnt so much more about P then pretty much anywhere else on the net. Really enjoy reading the success stories to, gives a brother some hope.
I'm 23 and have now suffered from Guttate P for around 3-4 years now. I've been prescribed, Dovobet (red one and blue one), Trimovate, and some more topical creams none of which have worked. 2 years ago I was sent to light therapy which worked very well and apart from a patch on my lower back and calve I was fully clear. However;
I think I remained clear for about 3 months which was the most disheartening part as I did all those sessions only for it to return so soon. It started coming back very slowly, new bit here, new bit there. For maybe 4-6 months my P came back but really not that bad. I saw my derm who said we should wait for a bit to treat it as I was on some other medication for acne and we wanted to tackle that first. Also I couldn't do more light treatment as enough time hadn't passed since my last treatments.
More months went by and slowly it was getting worse but within the last 2 weeks its just got really bad. All my guttate marks are bright red, thick scaly and constantly itching. My scalp is terrible as it has so many flakes in it and my groin looks like i've caught a hideous STD. I still have the Trimovate cream which will clear my groin, trunk and pube region within a week but then the P just comes back worse so I cant even treat that. I can see tiny red dots appearing on my body and now on my arms and I know these are just waiting to get bigger and worse.
I am going to see my derm tomorrow and talk about the best way to tackle this but I am hoping to get some advice from you all here:
I know the light therapy works well for me, it takes a bit of time but has minimal side effects and I even get a little glow. However, I just don't know whether it is worth it if it comes back so soon like the last time. (I should say I was due for 20 sessions last time and only did 18 as I was basically clear...I dont know whether that makes a difference). Have people here had times where light therapy has been more successful than others and can it be used in conjuction with more serious treatments like fumaderm?
Alot of you here seem to really recommend Fumaderm, it seems to work and seems like a really good long term treatment and prevention for P. The only draw backs are the side effects, I'm just not sure if I can handle them. My question here is do those of you who are on Fumaderm consider it a last resort when a more exhaustive list of treatments has been completed? Also, how long do you need to take it? Do you stop when/if the P clears?
My next question is about Stelara, I've read a few success stories here but then the numbers aren't exactly blowing me out the water. I would be drawn to this treatment though because the side effects 'appear' to be less apparent than fumaderm but then I haven't found that many stories to do any solid research about Sterala so any feedback here is appreciated.
To sum my post up, I just want to know the best way for me to find a long term prevention for my guttate to subside. I know light treatment works but dont want to go through weeks of sessions for my P to come back so I am thinking of tackling it with biologics.
Any help will be appreciated.
I've been browsing the site unregistered, like an undercover keyboard ninja for a few days now and have found the site very helpful and learnt so much more about P then pretty much anywhere else on the net. Really enjoy reading the success stories to, gives a brother some hope.
I'm 23 and have now suffered from Guttate P for around 3-4 years now. I've been prescribed, Dovobet (red one and blue one), Trimovate, and some more topical creams none of which have worked. 2 years ago I was sent to light therapy which worked very well and apart from a patch on my lower back and calve I was fully clear. However;
I think I remained clear for about 3 months which was the most disheartening part as I did all those sessions only for it to return so soon. It started coming back very slowly, new bit here, new bit there. For maybe 4-6 months my P came back but really not that bad. I saw my derm who said we should wait for a bit to treat it as I was on some other medication for acne and we wanted to tackle that first. Also I couldn't do more light treatment as enough time hadn't passed since my last treatments.
More months went by and slowly it was getting worse but within the last 2 weeks its just got really bad. All my guttate marks are bright red, thick scaly and constantly itching. My scalp is terrible as it has so many flakes in it and my groin looks like i've caught a hideous STD. I still have the Trimovate cream which will clear my groin, trunk and pube region within a week but then the P just comes back worse so I cant even treat that. I can see tiny red dots appearing on my body and now on my arms and I know these are just waiting to get bigger and worse.
I am going to see my derm tomorrow and talk about the best way to tackle this but I am hoping to get some advice from you all here:
I know the light therapy works well for me, it takes a bit of time but has minimal side effects and I even get a little glow. However, I just don't know whether it is worth it if it comes back so soon like the last time. (I should say I was due for 20 sessions last time and only did 18 as I was basically clear...I dont know whether that makes a difference). Have people here had times where light therapy has been more successful than others and can it be used in conjuction with more serious treatments like fumaderm?
Alot of you here seem to really recommend Fumaderm, it seems to work and seems like a really good long term treatment and prevention for P. The only draw backs are the side effects, I'm just not sure if I can handle them. My question here is do those of you who are on Fumaderm consider it a last resort when a more exhaustive list of treatments has been completed? Also, how long do you need to take it? Do you stop when/if the P clears?
My next question is about Stelara, I've read a few success stories here but then the numbers aren't exactly blowing me out the water. I would be drawn to this treatment though because the side effects 'appear' to be less apparent than fumaderm but then I haven't found that many stories to do any solid research about Sterala so any feedback here is appreciated.
To sum my post up, I just want to know the best way for me to find a long term prevention for my guttate to subside. I know light treatment works but dont want to go through weeks of sessions for my P to come back so I am thinking of tackling it with biologics.
Any help will be appreciated.