Health Boards
Fri-26-02-2016, 14:55 PM
Hi all,
I'll try to answer all your queries.
I went back on acitretin on a lower dose, unfortunately it resulted in severe and constant headaches, muscle pain, extreme fatigue, lowered my blood pressure so I was passing out and then the big one was blood and raised white blood cell count discovered in urine.
At the moment they believe it is the acitretin as discontinuation has resolved everything accept the kidneys. So I have to have a test for kidneys which is next week. They will also be looking for cancer as in cancer of the kidneys you also get bleeding and raised white blood cells. For no other reason than that are they looking for cancer. I won't know anything further until I attend the urology department next week, they have been great in rushing this through. I dont know the extent of damage if any at this point, just that there is a problem with the kidneys.
I can honestly say, I have never felt so ill and yet as I said previously, my skin was great. Obviously the psoriasis is coming back but I have now resigned myself to that's how it is. I won't ever again take any oral medications to treat it. I'm sure I will be fine but due to the fright it has given me, I think psoriasis is the lesser of 2 evils.
So next week I shall be all prepared for lights, camera, action, (all three are in this test) and hope they get my good side! I'll let you know the results.
Thank you all for your concern and the flowers.
Sandra
I'll try to answer all your queries.
I went back on acitretin on a lower dose, unfortunately it resulted in severe and constant headaches, muscle pain, extreme fatigue, lowered my blood pressure so I was passing out and then the big one was blood and raised white blood cell count discovered in urine.
At the moment they believe it is the acitretin as discontinuation has resolved everything accept the kidneys. So I have to have a test for kidneys which is next week. They will also be looking for cancer as in cancer of the kidneys you also get bleeding and raised white blood cells. For no other reason than that are they looking for cancer. I won't know anything further until I attend the urology department next week, they have been great in rushing this through. I dont know the extent of damage if any at this point, just that there is a problem with the kidneys.
I can honestly say, I have never felt so ill and yet as I said previously, my skin was great. Obviously the psoriasis is coming back but I have now resigned myself to that's how it is. I won't ever again take any oral medications to treat it. I'm sure I will be fine but due to the fright it has given me, I think psoriasis is the lesser of 2 evils.
So next week I shall be all prepared for lights, camera, action, (all three are in this test) and hope they get my good side! I'll let you know the results.
Thank you all for your concern and the flowers.
Sandra